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Institutional Review Boards and Health Services Research Data Privacy A Workshop Summary (2000) / Chapter Skim
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Executive Summary
Pages 1-4

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From page 1...
... The benefits of such studies include increased understanding of the effects of changing parts of the health care system, such as whether a change in the reimbursement policy for a particular class of drug has any effect on the health or quality of life of the participants. The major risk in such research is not physical harm, but risk resulting from improper disclosure of personal information, that is, a breach of confidentiality.
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From page 2...
... This summary describes the presentations and discussions that took place at the lOM Workshop on the role of Institutional Review Boards and Health Services Research Data Privacy. This summary reflects what transpired at the workshop and does not include committee deliberations, findings, or conclusions.
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From page 3...
... . An officer from Intermountain Health Care described the comprehensive technical protections and enforceable policies the organization has implemented in the protection of personally identifiable health information, whether in the context of research or in day to day operations of providing health services.
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From page 4...
... One paper analyzed issues regarding HSR with children. The author identified three issues of particular concern in considering health services research involving minors, including the heterogeneity of the population in question, complications arising from proxy consent, and the changing interests and risks affecting the subjects as they grow older.
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Key Terms

  • personally identifiable
  • health information
  • identifiable health
  • institutional review
  • human subjects

  • review boards
  • irb chair
  • irb review
  • care services
  • current practices

  • gather information
  • data privacy
  • invited speakers
  • help investigators
  • pharmaceutical companies

  • protect confidentiality
  • confidentiality language
  • data safeguarding
  • summary describes
  • paper analyzed

  • security products
  • school reported
  • rand described
  • clinical procedures
  • information security

  • irb approval
  • issues regarding
  • sponsored studies
  • include increased
  • hsr using


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