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Appendix B Appendix B Workshop Agenda and Presenters Workshop Agenda and Presenters Workshop on Improving Measurement of Late-Life Disability in Population Surveys: Beyond ADLs and IADLs January 8â9, 2009 National Academies Keck Center, Room 100 500 Fifth Street NW, Washington, DC Agenda January 8, 2009 OPENING SESSION 9:00â10:15 a.m. Welcome and Introductions Alan Jette, Chair Welcoming Remarks on Behalf of the National Michael Feuer Academies Welcome and Sponsorâs Perspectives Richard Suzman 9:45â10:15 a.m. Background and Context of the Workshop Alan Jette 10:15 a.m. Break 10:30 a.m.â SESSION ONE Moderator: 12:30 p.m. Vicki Freedman Challenges to Improve Current Measurement of Late-Life Functioning and Disability in Population Surveys (taking into account suitability for population surveys, relevance for monitoring trends, response bur- den and bias, and costs): App-B.1 157
158 App-B.2 IMPROVING THE MEASUREMENT OF LATE-LIFE DISABILITY Presenters: 10:30â10:45 a.m. Overview of Background Paperâ Barbara Altman Population Survey Measures of Functioning: Strengths and Weaknesses 10:45â11:00 a.m. Developing Questions in Surveys to Identify People Linda Fried Early in the Disablement Process 11:00â11:15 a.m. Enhancing the Ascertainment of Disability Thomas Gill 11:15â11:30 a.m. Self Versus Proxy Responses in Population Surveys Jay Magaziner 11:30â11:45 a.m. Expanding Mode of Survey Administration â (face to Arie Kapteyn face, telephone, Internet, etc.) 11:45 a.m.â 12:15 p.m. Comments and General Discussion 12:15 p.m. Working LunchâContinuation of Discussion 1:30â3:00 p.m. SESSION TWO Moderator: Alan Jette Potential Methods for Refining or Augmenting Cur- rent Measures of Late-Life Disability in Population Surveys to Foster Comparability Across Key Sub- groups (taking into account suitability for population surveys, relevance for monitoring trends, response bur- den and bias, and costs) Presenters: 1:30â1:45 p.m. Performance Measures in Population Surveys: Jack Guralnik Initial use and diffusion Using performance measures to calibrate dis- ability cut-points across population groups 1:45â2:00 p.m. Improving Patient Reported Measurement of Disability Karon Cook Using Item Response Theory/Computer-Adaptive Test- ing Techniques: Are these suitable for population surveys? Are they relevant for monitoring trends? 2:00â2:15 p.m. Possible Use of Easily Collected Biomarkers of Chronic David Weir Diseases to Supplement ADL, IADL: Measures that may track decline in functionality over the life course
APPENDIX B 159 3 App-B. Capture changes in functionality across thresh- olds. 2:15â2:30 p.m. Developing Measures of Time Use to Study Disability Vicki Freedman in the Panel Study of Income Dynamics; Potential for Using Time-Use Data to Augment Existing Measures of ADLs and IADLs: What elements of time use should be measured? Are these suitable for population surveys and relevant for monitoring trends? 2:30â3:00 p.m. Comments and General Discussion 3:00 p.m. Break 3:30â5:00 p.m. SESSION THREE Moderator: Linda Martin Improving the Validity of Cross-Population Com- parisonsâwithin the United States and Across Countriesâfor Measures of Disability Obtained in Population Surveys: Can vignettes validate judgmental reports in population surveys? Identification of homogeneous groups (demo- graphic/medical) to improve comparisons Cross-cultural comparisons Presenters: 3:3â3:45 p.m. Cognitive Limitation of Functioning and Disabilityâ Craig Velozo Additional Measures That Could Be Used in Surveys and Their Relationship to Current Measures 3:45â4:00 p.m. Using Vignettes to Improve Cross-Population Compa- Arthur van Soest rability of Self-Rated Disability Measures in Population Surveys 4:00â4:15 p.m. New Approaches to Cognitive and Field Testing of Dis- Julie Weeks ability Measures for Improving Cross-Cultural Compa- rability 4:15â5:00 p.m. Comments and General Discussion 5:00â6:00 p.m. Reception for All Attendees
160 App-B.4 IMPROVING THE MEASUREMENT OF LATE-LIFE DISABILITY January 9, 2009 9:00 a.m. OPENING REMARKS Alan Jette (Continental breakfast available in meeting room) 9:00â10:15 a.m. SESSION FOUR Moderator: Linda Fried The Need to Measure Functioning and Disability in Con- text (taking into account suitability for population surveys, relevance for monitoring trends, response burden and bias, and costs, including environmental barriers and adaptations, changes/differences in standards in what is accept- able, and pychological adaptations. Presenters: 9:00â9:15 a.m. Incorporating Assistive Technology and Home Modification Emily Agree Measures in Population Surveys 9:15â9:30 a.m. Incorporating Questions on Behavioral Adaptation to Carlos Weiss Functional Limitation Measures in Population Surveys 9:30â9:45 a.m. The Utility of Participation Measures in Population Surveys Gale Whiteneck 9:45â10:15 a.m. Comments and General Discussion 10:15 a.m. Break 10:30 a.m. â noon SESSION FIVE Moderator: Alan Jette Priority Areas for Research and Development Toward Improved Measures of Late-Life Disability in Population Surveys Panel of three key participants will lead off the dis- Thomas Gill cussion Arthur van Soest Discussion and comments from participants and at- David Weir tendees General discussion on disability measures Noonâ12:30 p.m. CONCLUDING REMARKS Richard Suzman, Alan Jette 12:30 p.m. Adjourn
APPENDIX B App-B.5 161 WORKSHOP PRESENTERS Emily Agree is an associate professor and associate director of the Hopkins Population Center at the Bloomberg School of Public Health, Johns Hopkins University. Barbara Altman is a disability statistics consultant. Karon Cook is a research associate professor at the University of Washington in Seattle. Michael Feuer is executive director of the Division of Behavioral and Social Sciences and Edu- cation, National Research Council. Vicki A. Freedman is a professor in the Department of Health Systems and Policy at the School of Public Health, University of Medicine and Dentistry of New Jersey. Linda Fried is dean of the Mailman School of Public Health and professor of epidemiology and medicine and senior vice president of Columbia University Medical Center. Thomas Gill is a professor of medicine, epidemiology, and investigative medicine at the School of Medicine and at the Adler Geriatric Assessment Center of Yale University. Jack Guralnik is chief of the Laboratory of Epidemiology, Demography, and Biometry at the National Institute on Aging, National Institutes of Health. Alan M. Jette is director, Health & Disability Research Institute, and professor, Health Policy and Management, at Boston University, School of Public Health. Arie Kapteyn is program director in labor and population at the RAND Corporation. Jay Magaziner is professor and chair of the Department of Epidemiology and Preventive Medi- cine, School of Medicine, at the University of Maryland, Baltimore. Linda G. Martin is senior fellow at the RAND Corporation.
App-B.6 162 IMPROVING THE MEASUREMENT OF LATE-LIFE DISABILITY Richard Suzman is associate director for Behavioral and Social Research at the National Institute on Aging, National Institutes of Health. Arthur van Soest is an economist in the Department of Econometrics & OR at Tilberg University, Tilburg, Netherlands, and at the RAND Corporation. Craig Velozo is in the Department of Occupational Therapy at the College of Public Health and Health Professions at the University of Florida and the Veterans Affairs Medical Center in Gainsville, Florida. Julie D. Weeks is acting chief of the Aging and Chronic Disease Studies Branch and project director of longitudinal studies of aging in the Office of Analysis and Epidemiology of the National Center for Health Statistics, Centers for Disease Control and Prevention. David Weir is a research professor at the Survey Research Center at the University of Michigan. Carlos Weiss is assistant professor in the Division of Geriatric Medicine at the Johns Hopkins University School of Medicine. Gale Whiteneck is director of research at Craig Hospital in Englewood, Colorado.