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Epilepsy Across the Spectrum: Promoting Health and Understanding (2012)

Chapter: Appendix A: Workshop Agendas

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Suggested Citation:"Appendix A: Workshop Agendas." Institute of Medicine. 2012. Epilepsy Across the Spectrum: Promoting Health and Understanding. Washington, DC: The National Academies Press. doi: 10.17226/13379.
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A

Workshop Agendas

WORKSHOP ON PUBLIC HEALTH SURVEILLANCE,1
POPULATION HEALTH RESEARCH, AND DATA
COLLECTION FOR THE EPILEPSIES

March 21, 2011

The Beverly Hilton
9876 Wilshire Boulevard
Beverly Hills, California

8:30 a.m. Welcome and Opening Remarks
Mary Jane England, Chair
IOM Committee on the Public Health Dimensions of the Epilepsies
8:45 Public Testimony—Registered Speakers
Moderator: Mary Jane England
(3 minutes per speaker)
Claude Wasterlain, University of California, Los Angeles, School of Medicine, Department of Veterans Affairs Greater Los Angeles Health Care System
Jeffrey Catania, Children′s Institute, Inc.

_______________

1 Surveillance is defined broadly as continuous and methodical data collection and analysis for public health programs, including registries and disease-specific reporting systems, surveys, and administrative and clinical data sets.

Suggested Citation:"Appendix A: Workshop Agendas." Institute of Medicine. 2012. Epilepsy Across the Spectrum: Promoting Health and Understanding. Washington, DC: The National Academies Press. doi: 10.17226/13379.
×
  Louis Stanislaw, LJPS Creations—The Epilepsy Project
LLC Michelle Marciniak, CURE Tracy Dixon-Salazar, University of California, San
Diego, Howard Hughes Medical Institute Carrie Baum, Greater Los Angeles Epilepsy Foundation Jim Abrahams, Charlie Foundation to Help Cure
Pediatric Epilepsy Lisa Soeby, Hope for Hypothalamic Hamartomas Lori Towles
Frances Jensen, American Epilepsy Society Gary Mathern, International League Against Epilepsy Joan Skluzacek, IDEA League
9:30 Panel 1: The Impact of Epilepsy on Patients, Families, the Health Care System, and Society
Facilitator: Charles Begley
9:30-9:40 Panel Introductions
9:40-9:50 Direct Costs—Diagnosis and Treatment David R. Lairson, University of Texas Health Science Center at Houston
9:50-10:00 Indirect Costs—Academic Achievement, Employment,
and Productivity John Langfitt, University of Rochester Medical Center
10:00-10:10 Quality of Life
Gus Baker, University of Liverpool and the Walton
Centre for Neurology and Neurosurgery (via phone)
10:10-10:20 Impact Across Populations—Health Disparities and
Considerations for Subpopulations Samuel Wiebe, Hotchkiss Brain Institute at the University
of Calgary Medicine
10:20-11:00 Discussion with the Committee
  Questions:
  What is known about the impact of epilepsy on patients, families, the health care system, and society?
  • How is the impact of epilepsy measured for direct and indirect costs and quality of life? What are the limitations of these measurements?
Suggested Citation:"Appendix A: Workshop Agendas." Institute of Medicine. 2012. Epilepsy Across the Spectrum: Promoting Health and Understanding. Washington, DC: The National Academies Press. doi: 10.17226/13379.
×
  What are the direct costs associated with epilepsy and how do those costs change over time and with severity of disease?
  • What are the indirect costs associated with epilepsy? How does epilepsy affect academic achievement, employment, and productivity?
  • What impact does epilepsy have on quality of life for patients and family members?
  • How does the impact of epilepsy vary across
subpopulations (e.g., children, women, older adults, racial and ethnic minorities)?
  • How does stigma affect quality of life and how does stigma vary across cultures?
  • Where are the gaps in knowledge from a population perspective? From an individual and family perspective?
  • What data need to be collected to accurately capture the burden of the epilepsies, particularly with regard to differences in specific populations as well as differences in etiology, severity, and outcomes?
  • What is the future for collecting data and
information on the impact of the epilepsies? How will advances in technology and electronic health records (EHRs) affect data collection efforts?
11:00 Break
11:15 Panel 2: Epilepsy Surveillance—Gaps and Opportunities
Facilitator: David Grant
11:15-11:20 Panel Introductions
11:20-11:30 Current State of Epilepsy Surveillance Edwin Trevathan, St. Louis University School of Public Health
11:30-11:40 Building on Existing Public Health Surveillance Systems Wayne H. Giles, National Center for Chronic Disease Prevention and Health Promotion
11:40-11:50 Lessons from the Development of a Canadian National
System of Surveillance Nathalie Jetté, University of Calgary Medicine
11:50-12:00 Challenges and Opportunities for Surveillance—The
Patient and Family Perspective Mary Macleish, Epilepsy Foundation of Arizona
Suggested Citation:"Appendix A: Workshop Agendas." Institute of Medicine. 2012. Epilepsy Across the Spectrum: Promoting Health and Understanding. Washington, DC: The National Academies Press. doi: 10.17226/13379.
×
12:00-12:30 Discussion with the Committee
  Questions:
  What are the current mechanisms for surveillance of epilepsy?
  • How can epilepsy surveillance be better integrated with existing public health surveillance and survey systems?
  • How can surveys and registries be used to better assess the impact of the epilepsies?
  • What are the challenges associated with collecting data on specific subpopulations (e.g., children, women, older adults, racial and ethnic minorities)?
  • What are the gaps and opportunities?
  • What can be learned from international epilepsy surveillance models?
  • What is the future for epilepsy surveillance? How will advances in technology and EHRs affect epilepsy surveillance?
12:30 p.m. Lunch
1:15 Panel 3: Improving Epilepsy Surveillance—Lessons from Other Surveillance Systems
Facilitator: Dale Hesdorffer
1:15-1:20 Panel Introductions
1:20-1:30 SEER—Lessons from Cancer Surveillance Myles Cockburn, University of Southern California Keck School of Medicine
1:30-1:40 Lessons from Autism Surveillance Marshalyn Yeargin-Allsopp, National Center on Birth Defects and Developmental Disabilities (via phone)
1:40-1:50 Veterans Surveillance Systems
Paul D. Varosy, Department of Veterans Affairs, Eastern Colorado Health Care System
1:50-2:00 Future Opportunities for Use of Existing Data Collection Systems—The Health Maintenance Organization Research Network
  Stephen K. Van Den Eeden, Kaiser Permanente Northern California
2:00-2:30 Discussion with the Committee
Suggested Citation:"Appendix A: Workshop Agendas." Institute of Medicine. 2012. Epilepsy Across the Spectrum: Promoting Health and Understanding. Washington, DC: The National Academies Press. doi: 10.17226/13379.
×
  Questions:
  What are the successes and challenges associated with other disease surveillance systems?
  • What are the challenges and opportunities offered by surveys and registries?
  • What lessons have been learned from these systems that could be applied to epilepsy?
  • How can strategies used for surveillance in the military and the veterans health systems be applied to civilian surveillance systems?
2:30 Break
2:45 Panel 4: Improving Epilepsy Surveillance—Overcoming the Complexities of Data Collection
Facilitator: Joseph Sirven
2:45-2:50 Panel Introductions
2:50-3:00 Defining and Classifying the Epilepsies Jerome Engel, University of California, Los Angeles, Seizure Disorder Center
3:00-3:10 Comorbidities—Pediatric, Adolescent, and Young Adult
Populations Anne Berg, Northern Illinois University
3:10-3:20 Comorbidities—Adult and Geriatric Populations Frank Gilliam, Geisinger Health System
3:20-3:30 Emerging Models of Data Collection and Surveillance Arien Malec, Nationwide Health Information Network
3:30-4:00 Discussion with the Committee
  Questions:
  • How do definitions vary in the epilepsies and how do these variations affect data collection?
  • What are the limitations and barriers associated with current classification systems and how can they be overcome?
  • How do variations in definitions affect data collection and classification?
  • What data need to be gathered to determine how epilepsy interacts with other conditions?
  • How has and how will technology change the way that surveillance is conducted (e.g., EHRs, online data collection, move to cell phones)?
Suggested Citation:"Appendix A: Workshop Agendas." Institute of Medicine. 2012. Epilepsy Across the Spectrum: Promoting Health and Understanding. Washington, DC: The National Academies Press. doi: 10.17226/13379.
×
4:00 Panel 5: Risk Factors and Prevention
Facilitator: Christi Heck
4:00-4:05 Panel Introductions
4:05-4:15 Measuring and Assessing Risk
W. Allen Hauser, Columbia University Mailman School of Public Health
4:15-4:25 Risk Factors in Pediatric Populations Shlomo Shinnar, Montefore Medical Center and the Albert Einstein College of Medicine
4:25-4:35 Strategies for Primary Prevention
Susan Herman, Beth Israel Deaconess Medical Center
4:35-5:00 Discussion with the Committee
  Questions:
  What is known about the risk factors for developing epilepsy and how can these risk factors be measured?
  • How do risk factors vary across specific subpopulations?
  • How can risk factors be identified for comorbid conditions?
  How can risk factors be used to inform efforts in prevention?
  • What epidemiologic research or public health studies are needed to inform the development of strategies to prevent epilepsy?
5:00 Concluding Remarks
Moderator: Mary Jane England
5:15 Adjourn
Suggested Citation:"Appendix A: Workshop Agendas." Institute of Medicine. 2012. Epilepsy Across the Spectrum: Promoting Health and Understanding. Washington, DC: The National Academies Press. doi: 10.17226/13379.
×

WORKSHOP ON THE PUBLIC HEALTH DIMENSIONS OF THE EPILEPSIES: HEALTH CARE QUALITY AND ACCESS AND EDUCATION OF PATIENTS, FAMILIES, AND PROVIDERS

June 28-29, 2011

Keck Center
500 Fifth Street, NW
Room 100
Washington, DC
June 28: OPEN SESSION

8:15 a.m. Welcome and Opening Remarks
Mary Jane England, Committee Chair
8:30 Public Testimony
  Moderator: Mary Jane England
  Brandy Parker
  Ilene Miller, Hope for Hypothalamic Hamartomas
  Carmita Vaughan, CURE
  Steve Wulchin
  Cheryl Ann Tubby, American Epilepsy Society
  Mark Brooks, Abilities Network-Epilepsy Support Group
  Mylissa Daniels
  Kevin Malone, Epilepsy Therapy Project
  Melinda Heine
9:00 Panel 1: Systems and Pathways of Health Care for the Epilepsies: Existing Models and Opportunities for Improvement
  Facilitators: Patricia Osborne Shafer and Paul Jarris
9:00-9:05 Panel Introductions
9:05-9:15 The Patient Perspective
Warren Lammert, Epilepsy Therapy Project
9:15-9:25 Epilepsy Centers
Robert J. Gumnit, National Association of Epilepsy Centers
9:25-9:35 Department of Veterans Affairs (VA) Epilepsy Centers of Excellence
Karen Parko, San Francisco VA Medical Center
Suggested Citation:"Appendix A: Workshop Agendas." Institute of Medicine. 2012. Epilepsy Across the Spectrum: Promoting Health and Understanding. Washington, DC: The National Academies Press. doi: 10.17226/13379.
×
9:35-9:45 UK System: Lessons Learned
Helen Cross, Great Ormond Street Hospital for Children (via phone)
9:45-9:55 Clinical Pathways: Health System Perspective David Nerenz, Henry Ford Health System
9:55-10:25 Committee Questions and Discussion
10:25-10:30 Concluding Remarks and Panel Summary
  Questions:
  What experiences do people with epilepsy and their families have when entering and moving through the health system? What challenges do they confront, and how are they overcome?
  • What are the current pathways and models of care for people with epilepsy in your health system? What are the current models of care for specific populations with epilepsy, including children, women, older adults, and racial and ethnic minorities?
  • How do people with epilepsy move through your health system? What is known about the time to treatment and referral for people with epilepsy in your health system?
  • How is care coordinated for people with epilepsy? What is the role of epilepsy specialists in your health system?
  • How do you measure quality of care in your health systems? What strategies do you use to ensure access to care in your system?
  • What is known about health outcomes for people with epilepsy treated in your health system?
  • What international models of care for people with epilepsy have lessons learned that could be applied to the United States?
  • What are your priority recommendations for
improving systems of care to better meet the needs of people with epilepsy?
10:30 Break
10:45 Panel 2: Health Care for the Epilepsies: Quality of Care
Facilitators: Ramon Diaz-Arrastia and Carolyn Cocotas
Suggested Citation:"Appendix A: Workshop Agendas." Institute of Medicine. 2012. Epilepsy Across the Spectrum: Promoting Health and Understanding. Washington, DC: The National Academies Press. doi: 10.17226/13379.
×
10:45-10:50 Panel Introductions
10:50-11:00 Treatment Guidelines and Comparative Effectiveness
Research Jacqueline French, New York University
11:00-11:10 Medication Issues: Brand Versus Generic Seizure
Medications Michel Berg, University of Rochester
11:10-11:20 Lessons Learned from the Implementation of
Performance Measures and Centers of Excellence for the Care of Stroke Patients
Marilyn Rymer, Saint Luke′s Brain and Stroke Institute (via phone)
11:20-11:30 New Models in Health Care Services Delivery and
Reimbursement Benjamin Druss, Emory University
11:30-12:10 Committee Questions and Discussion
12:10-12:15 Concluding Remarks and Panel Summary
  Questions:
  What further efforts are needed on epilepsy treatment guidelines and parameters for care? How are treatment guidelines evaluated? What comparative effectiveness research exists for best practices?
  • How are performance measures endorsed and instituted?
  • What is known about the efficacy of brand versus generic seizure medications? How does this impact access to medications?
  • How do reimbursement issues impact access to care?
  • How could health care reform affect the access to and quality of care for people with epilepsy?
  • What innovative approaches are needed to improve health care?
  • What is the future for models of care in light of the 2010 Patient Protection and Affordable Care Act?
  In your perspective, what makes up appropriate care for people with epilepsy in regards to services and personnel?
  What are your priority recommendations for improving quality of care and access to care for people with epilepsy?
Suggested Citation:"Appendix A: Workshop Agendas." Institute of Medicine. 2012. Epilepsy Across the Spectrum: Promoting Health and Understanding. Washington, DC: The National Academies Press. doi: 10.17226/13379.
×
12:15 p.m. Lunch
1:00 Panel 3: Health Care for the Epilepsies: Access and Barriers
Facilitators: Sandra Cushner-Weinstein and Lionel Carmant
1:00-1:05 Panel Introductions
1:05-1:15 Overcoming Disparities in Access to Care for
Underserved Populations Jorge Burneo, University of Western Ontario
1:15-1:25 Barriers to Access
Charles Onufer, University of Illinois at Chicago (retired)
1:25-1:35 Lessons Learned from the Epilepsy Learning
Collaborative Deanna McPherson, Health Resources and Services
Administration
1:35-1:45 Care Coordination: Improving Transitions and
Coordination Between Health Care Providers and Intersections with Community Services
Diane Carter, University of Virginia, Care Coordination for Children
1:45-1:55 Innovative Approaches to Improving Access to Care Jeanette Hartshorn, Telemedicine Epilepsy Management Program of Texas
1:55-2:25 Committee Questions and Discussion
2:25-2:30 Concluding Remarks and Panel Summary
  Questions:
  What are the barriers to access and care across populations? For specific populations? What disparities in care exist currently?
  • What lessons have been learned about improving access and eliminating disparities? What are possible solutions to overcome these barriers?
  • What is known about whether the current workforce is adequate to provide quality health care for people with epilepsy?
  • How might changes in technology (e.g., telemedicine) impact access to care?
  • What successful models exist for integrating the care of risk factors, comorbidities, and sequelae in people with epilepsy?
Suggested Citation:"Appendix A: Workshop Agendas." Institute of Medicine. 2012. Epilepsy Across the Spectrum: Promoting Health and Understanding. Washington, DC: The National Academies Press. doi: 10.17226/13379.
×
  What needs to be done to improve care coordination encompassing health care, mental health care, education, employment, and other services? What are your priority recommendations for improving access to care and reducing health disparities for people with epilepsy?
2:30 Break
2:45 Panel 4: Education of Health Care Professionals
Facilitator: Gregory Holmes
2:45-2:50 Panel Introductions
2:50-3:00 Educating Neurologists and Epileptologists David Labiner, University of Arizona
3:00-3:10 Educating Primary Care Providers Paul Levisohn, University of Colorado
3:10-3:20 Nursing Education
Janice Buelow, University of Indiana
3:20-3:30 Psychiatry
Deborah Hales, American Psychiatric Association
3:30-3:40 Geriatrics
Ilo Leppik, University of Minnesota
3:40-4:10 Committee Questions and Discussion
4:10-4:15 Concluding Remarks and Panel Summary
  Questions:
  • What are the current approaches being used to educate and test knowledge and competence of health professionals about the epilepsies?
  • Are there core competencies and/or curricula currently available that focus on the epilepsies?
  • How much time is devoted to teaching information relevant to the epilepsies? At what level of detail is the information taught?
  • What role does continuing education play in
educating health professionals about the epilepsies?
  • How could technology be used to expand and improve education opportunities and provide decision support for health professionals who work with people with epilepsy?
  • What are the best strategies for educating health professionals about clear communication and
Suggested Citation:"Appendix A: Workshop Agendas." Institute of Medicine. 2012. Epilepsy Across the Spectrum: Promoting Health and Understanding. Washington, DC: The National Academies Press. doi: 10.17226/13379.
×
  effective interactions with patients who have epilepsy?
  What are the barriers and challenges to improving education of health professionals about the epilepsies? How can these barriers be overcome?
  • What are your priority recommendations for improving the education of health professionals about the epilepsies?
4:15 Panel 5: Education of Patients and Families
Facilitators: Joan Austin
4:15-4:20 Panel Introductions
4:20-4:30 Successful Patient and Family Education Kate Lorig, Stanford University (via phone)
4:30-4:40 Educating Patients in Health Care Settings Mimi Callanan, Stanford University
4:40-4:50 Education for Self-Management
Colleen DiIorio, Emory University (via phone)
4:50-5:00 Ensuring Health Literacy and Cultural Appropriateness Cheryl Bettigole, Philadelphia Department of Public Health
5:00-5:10 The Role of Technology in Educating Patients and Families
  Michael Wolf, Northwestern University
5:10-5:40 Committee Questions and Discussion
5:40-5:45 Concluding Remarks and Panel Summary
  Questions:
  • What are the health care (psychosocial as well as medical) education needs of patients? Of families? Where are the gaps in knowledge? How can interventions be aimed at these gaps?
  • What are the critical junctures for educating patients and families about the epilepsies?
  • How can successful education efforts improve self-management?
  • What are the roles of health care providers, foundations and organizations, and community programs in ensuring that patients and families are well educated and informed about the epilepsies?
  • What are the key components and best practices required for developing successful patient and family education programs?
Suggested Citation:"Appendix A: Workshop Agendas." Institute of Medicine. 2012. Epilepsy Across the Spectrum: Promoting Health and Understanding. Washington, DC: The National Academies Press. doi: 10.17226/13379.
×
  What are the challenges and barriers for developing successful patient and family education interventions and programs?
  • How can new technology, online resources, and social media tools effectively be used to improve patient and family education?
  • What are the best strategies for ensuring that
education interventions are targeted appropriately in terms of health literacy and cultural sensitivity?
  • What are your priority recommendations for improving the education of patient and families about the epilepsies?
5:45 Adjourn
  June 29: OPEN SESSION
8:15 a.m. Welcoming Remarks
Mary Jane England, Committee Chair
8:30 Public Testimony
Moderator: Mary Jane England
  John Pellock, American Epilepsy Society
  Robert Moss, SeizureTracker.com
  Richard Leslie, Wyoming Epilepsy Association
  Mary Jo Pugh, Veterans Health Administration
  John Gambo
  Michael Bornemann
  Sabrina Cooke
9:00 Panel 6: Improving Quality of Life: Community Programs and Resources
Facilitator: Dilip Jeste
9:00-9:05 Panel Introductions
9:05-9:15 Mental Health Services and Resources Across the Lifespan
9:15-9:25 Naomi Chaytor, University of Washington (via phone) School-Based Services and Resources
9:25-9:35 Vocational and Employment Services and Resources Robert T. Fraser, University of Washington (via phone)
Suggested Citation:"Appendix A: Workshop Agendas." Institute of Medicine. 2012. Epilepsy Across the Spectrum: Promoting Health and Understanding. Washington, DC: The National Academies Press. doi: 10.17226/13379.
×
9:35-9:45 Independent Living Resources and Services
Rebecca Rubin, Jewish Foundation for Group Homes
9:45-9:55 Other Community Resources
Patricia Gibson, Wake Forest University
9:55-10:25 Committee Questions and Discussion
10:25-10:30 Concluding Remarks and Panel Summary
  Questions:
  What mental health services and resources (including psychosocial and mood issues) are available for people with epilepsy and their caregivers? What services exist for people with psychogenic seizures?
  • What school-based services and resources (e.g.,
individualized education programs) exist for children and young adults with epilepsy to address cognitive and developmental issues, including learning and behavioral problems? How are program employees educated about epilepsy?
  • What vocational and employment services and
resources exist for people with epilepsy? What exists for young adults transitioning from school to the workforce? How are cognitive problems related to employment handled? How are employers educated about epilepsy?
  • What resources and services exist to support
independent living for people with epilepsy? How are cognitive and geriatric issues handled?
  • What general community resources and services currently exist for people with epilepsy? What opportunities exist to support the participation of people with epilepsy in society? What programs exist specifically for children and young adults? For seniors? For other specific populations?
  • How successful are these programs? What is known about the impact of these programs on the quality of life of people with epilepsy and their families?
  • What are the gaps and opportunities for improvement?
  • What are your priority recommendations for
improving community programs to better meet the needs of people with epilepsy?
10:30 Break
Suggested Citation:"Appendix A: Workshop Agendas." Institute of Medicine. 2012. Epilepsy Across the Spectrum: Promoting Health and Understanding. Washington, DC: The National Academies Press. doi: 10.17226/13379.
×
10:45 Panel 7: Beyond Stigma: Public Education and Awareness Campaigns
Facilitator: Vicki Beck
10:45-10:50 Panel Introductions
10:50-11:00 Epilepsy Education and Awareness Campaigns: Successes,
Challenges and Next Steps to Reduce Stigma Sandy Finucane, Epilepsy Foundation
11:00-11:10 Global Mental Health Programs: Progress, Lessons
Learned, and Recommendations to Reduce Stigma Bernice A. Pescosolido, Indiana University
11:10-11:20 Social Marketing Campaigns: Impact on Mental Health
Stigma Chris Marshall, Substance Abuse and Mental Health
Administration
11:20-11:30 Advocacy Efforts to Reduce Mental Health Stigma Robert Carolla, National Alliance on Mental Illness
11:30-11:40 Leveraging Media to Reduce Stigma: Broadcast, Print,
Internet, and User-Generated Sites Otto Wahl, University of Hartford
11:40-12:10 Committee Questions and Discussion
12:10-12:15 Concluding Remarks and Panel Summary
  Questions:
  Please describe public education and awareness campaigns with which your organization has been involved. What were the outcomes of the campaign and how was success measured?
  • How can public education and awareness campaigns be used to increase knowledge and understanding about the epilepsies, change attitudes and perceptions, and reduce stigma?
  • What are the key components and best practices that are required to develop a successful public education and awareness campaign?
  • How can online tools and social media effectively be used for public education and awareness campaigns?
  • What are the challenges and barriers for developing a successful public education and awareness campaign for the epilepsies?
Suggested Citation:"Appendix A: Workshop Agendas." Institute of Medicine. 2012. Epilepsy Across the Spectrum: Promoting Health and Understanding. Washington, DC: The National Academies Press. doi: 10.17226/13379.
×
  • What is the role of the media in educating the public and how can this role be leveraged to better educate the public about the epilepsies?
12:15 p.m. Closing Remarks
Mary Jane England, Committee Chair
12:30 Adjourn
Suggested Citation:"Appendix A: Workshop Agendas." Institute of Medicine. 2012. Epilepsy Across the Spectrum: Promoting Health and Understanding. Washington, DC: The National Academies Press. doi: 10.17226/13379.
×
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×
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×
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Although epilepsy is one of the nation's most common neurological disorders, public understanding of it is limited. Many people do not know the causes of epilepsy or what they should do if they see someone having a seizure. Epilepsy is a complex spectrum of disorders that affects an estimated 2.2 million Americans in a variety of ways, and is characterized by unpredictable seizures that differ in type, cause, and severity. Yet living with epilepsy is about much more than just seizures; the disorder is often defined in practical terms, such as challenges in school, uncertainties about social situations and employment, limitations on driving, and questions about independent living.

The Institute of Medicine was asked to examine the public health dimensions of the epilepsies, focusing on public health surveillance and data collection; population and public health research; health policy, health care, and human services; and education for people with the disorder and their families, health care providers, and the public. In Epilepsy Across the Spectrum, the IOM makes recommendations ranging from the expansion of collaborative epilepsy surveillance efforts, to the coordination of public awareness efforts, to the engagement of people with epilepsy and their families in education, dissemination, and advocacy for improved care and services. Taking action across multiple dimensions will improve the lives of people with epilepsy and their families. The realistic, feasible, and action-oriented recommendations in this report can help enable short- and long-term improvements for people with epilepsy. For all epilepsy organizations and advocates, local, state, and federal agencies, researchers, health care professionals, people with epilepsy, as well as the public, Epilepsy Across the Spectrum is an essential resource.

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