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Suggested Citation:"Front Matter." Institute of Medicine. 2014. Partnering with Patients to Drive Shared Decisions, Better Value, and Care Improvement: Workshop Proceedings. Washington, DC: The National Academies Press. doi: 10.17226/18397.
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PARTNERING
with PATIENTS

to Drive Shared Decisions,
Better Value,
and Care Improvement

WORKSHOP PROCEEDINGS

Roundtable on Value & Science-Driven Health Care

INSTITUTE OF MEDICINE
              OF THE NATIONAL ACADEMIES

THE NATIONAL ACADEMIES PRESS

Washington, D.C.

www.nap.edu

Suggested Citation:"Front Matter." Institute of Medicine. 2014. Partnering with Patients to Drive Shared Decisions, Better Value, and Care Improvement: Workshop Proceedings. Washington, DC: The National Academies Press. doi: 10.17226/18397.
×

THE NATIONAL ACADEMIES PRESS 500 Fifth Street, NW Washington, DC 20001

NOTICE: The workshop that is the subject of these workshop proceedings was approved by the Governing Board of the National Research Council, whose members are drawn from the councils of the National Academy of Sciences, the National Academy of Engineering, and the Institute of Medicine.

This activity was supported by Grant No. 3463 between the National Academy of Sciences and the Gordon and Betty Moore Foundation and Grant No. 7781311 between the National Academy of Sciences and the Blue Shield of California Foundation. The views presented in this publication do not necessarily reflect the views of the organizations or agencies that provided support for the activity.

International Standard Book Number-13: 978-0-309-28896-5
International Standard Book Number-10: 0-309-28896-7

Additional copies of these workshop proceedings are available for sale from the National Academies Press, 500 Fifth Street, NW, Keck 360, Washington, DC 20001; (800) 624-6242 or (202) 334-3313; http://www.nap.edu.

For more information about the Institute of Medicine, visit the IOM home page at:
www.iom.edu.

Copyright 2014 by the National Academy of Sciences. All rights reserved.

Printed in the United States of America

The serpent has been a symbol of long life, healing, and knowledge among almost all cultures and religions since the beginning of recorded history. The serpent adopted as a logotype by the Institute of Medicine is a relief carving from ancient Greece, now held by the Staatliche Museen in Berlin.

Suggested citation: IOM (Institute of Medicine). 2014. Partnering with patients to drive shared decisions, better value, and care improvement: Workshop proceedings. Washington, DC: The National Academies Press.

Suggested Citation:"Front Matter." Institute of Medicine. 2014. Partnering with Patients to Drive Shared Decisions, Better Value, and Care Improvement: Workshop Proceedings. Washington, DC: The National Academies Press. doi: 10.17226/18397.
×

Knowing is not enough; we must apply.
Willing is not enough; we must do.
”      

                                                —Goethe

image

INSTITUTE OF MEDICINE
              OF THE NATIONAL ACADEMIES

Advising the Nation. Improving Health.

Suggested Citation:"Front Matter." Institute of Medicine. 2014. Partnering with Patients to Drive Shared Decisions, Better Value, and Care Improvement: Workshop Proceedings. Washington, DC: The National Academies Press. doi: 10.17226/18397.
×

THE NATIONAL ACADEMIES

Advisers to the Nation on Science, Engineering, and Medicine

The National Academy of Sciences is a private, nonprofit, self-perpetuating society of distinguished scholars engaged in scientific and engineering research, dedicated to the furtherance of science and technology and to their use for the general welfare. Upon the authority of the charter granted to it by the Congress in 1863, the Academy has a mandate that requires it to advise the federal government on scientific and technical matters. Dr. Ralph J. Cicerone is president of the National Academy of Sciences.

The National Academy of Engineering was established in 1964, under the charter of the National Academy of Sciences, as a parallel organization of outstanding engineers. It is autonomous in its administration and in the selection of its members, sharing with the Ntional Academy of Sciences the responsibility for advising the federal government. The National Academy of Engineering also sponsors engineering programs aimed at meeting national needs, encourages education and research, and recognizes the superior achievements of engineers. Dr. C. D. Mote, Jr., is president of the National Academy of Engineering.

The Institute of Medicine was established in 1970 by the National Academy of Sciences to secure the services of eminent members of appropriate professions in the examination of policy matters pertaining to the health of the public. The Institute acts under the responsibility given to the National Academy of Sciences by its congressional charter to be an adviser to the federal government and, upon its own initiative, to identify issues of medical care, research, and education. Dr. Harvey V. Fineberg is president of the Institute of Medicine.

The National Research Council was organized by the National Academy of Sciences in 1916 to associate the broad community of science and technology with the Academy’s purposes of furthering knowledge and advising the federal government. Functioning in accordance with general policies determined by the Academy, the Council has become the principal operating agency of both the National Academy of Sciences and the National Academy of Engineering in providing services to the government, the public, and the scientific and engineering communities. The Council is administered jointly by both Academies and the Institute of Medicine. Dr. Ralph J. Cicerone and Dr. C. D. Mote, Jr., are chair and vice chair, respectively, of the National Research Council.

www.national-academies.org

Suggested Citation:"Front Matter." Institute of Medicine. 2014. Partnering with Patients to Drive Shared Decisions, Better Value, and Care Improvement: Workshop Proceedings. Washington, DC: The National Academies Press. doi: 10.17226/18397.
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PLANNING COMMITTEE ON PARTNERING WITH PATIENTS TO DRIVE SHARED DECISIONS, BETTER VALUE, AND CARE IMPROVEMENT1

CHRISTINE BECHTEL (Chair), Advisor and Former Vice President, National Partnership for Women & Families

TERRY ADIRIM, Director, Office of Special Health Affairs, Health Resources and Services Administration

LEAH BINDER, Chief Executive Officer, The Leapfrog Group

VERONICA GOFF, Vice President, Institute on Health Care Costs and Solutions, National Business Group on Health (formerly)

MARK GORMAN, Patient Advocate, Former Director of Survivorship Policy, National Coalition for Cancer Survivorship

PAUL GRUNDY, Global Director of Healthcare Transformation, IBM

ART LEVIN, Director, Center for Medical Consumers

JIM MANGIA, President and Chief Executive Officer, St. John’s Well Child & Family Center

LYN PAGET, Managing Partner, Health Policy Partners

ERIC RACINE, Vice President, Advocacy, Sanofi U.S.

SUSAN C. REINHARD, Director, Public Policy Institute, AARP

CRAIG ROBBINS, Medical Director, Clinical Guidelines (KP Colorado), Kaiser Permanente

JOHN SANTA, Director, Consumer Reports Health Ratings Center, Consumers Union

SUSAN SHERIDAN, Deputy Director, Patient Engagement, Patient-Centered Outcomes Research Institute

SUSAN BROWN TRINIDAD, Research Scientist, University of Washington

IOM Staff

KATE BURNS, Program Assistant (from July 2013)

CLAUDIA GROSSMANN, Senior Program Officer

DIEDTRA HENDERSON, Program Officer (from March 2013)

ELIZABETH JOHNSTON, Program Assistant

VALERIE ROHRBACH, Senior Program Assistant

JULIA SANDERS, Senior Program Assistant (through August 2013)

ROBERT SAUNDERS, Senior Program Officer

LEIGH STUCKHARDT, Research Associate (through January 2013)

ISABELLE VON KOHORN, Program Officer (through September 2012)

BARRET ZIMMERMANN, Program Assistant (through October 2013)

J. MICHAEL MCGINNIS, Senior Scholar, Executive Director, Roundtable on Value & Science-Driven Health Care

_____________________

1 Institute of Medicine planning committees are solely responsible for organizing the workshop, identifying topics, and choosing speakers. The responsibility for the published workshop proceedings rests with the institution.

Suggested Citation:"Front Matter." Institute of Medicine. 2014. Partnering with Patients to Drive Shared Decisions, Better Value, and Care Improvement: Workshop Proceedings. Washington, DC: The National Academies Press. doi: 10.17226/18397.
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Suggested Citation:"Front Matter." Institute of Medicine. 2014. Partnering with Patients to Drive Shared Decisions, Better Value, and Care Improvement: Workshop Proceedings. Washington, DC: The National Academies Press. doi: 10.17226/18397.
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ROUNDTABLE ON VALUE & SCIENCE-DRIVEN HEALTH CARE1

MARK B. MCCLELLAN (Chair), Director, Engelberg Center, The Brookings Institution

DAVID BLUMENTHAL, President, The Commonwealth Fund

BRUCE G. BODAKEN, Former Chairman and Chief Executive Officer, Blue Shield of California

PAUL CHEW, Chief Science Officer and Chief Medical Officer, Sanofi U.S.

CAROLYN M. CLANCY, Director, Agency for Health Care Research and Quality (Ex Officio)

FRANCIS COLLINS, Director, National Institutes of Health (Ex Officio) (designee: Susan Shurin)

HELEN DARLING, President, National Business Group on Health

SUSAN DEVORE, Chief Executive Officer, Premier, Inc.

JUDITH FAULKNER, Founder and Chief Executive Officer, Epic Health Systems

THOMAS R. FRIEDEN, Director, Centers for Disease Control and Prevention (Ex Officio) (designee: Gail Janes)

PATRICIA A. GABOW, Former Chief Executive Officer, Denver Health

ATUL GAWANDE, General and Endocrine Surgeon, Brigham and Women’s Hospital

GARY L. GOTTLIEB, President and Chief Executive Officer, Partners HealthCare System

JAMES A. GUEST, President and Chief Executive Officer, Consumers Union

GEORGE C. HALVORSON, Chairman and Chief Executive Officer, Kaiser Permanente

MARGARET A. HAMBURG, Commissioner, Food and Drug Administration (Ex Officio) (designee: Peter Lurie)

JAMES HEYWOOD, Co-Founder and Chairman, PatientsLikeMe

RALPH I. HORWITZ, Senior Vice President, Clinical Evaluation Sciences, GlaxoSmithKline

PAUL HUDSON, Executive Vice President, AstraZeneca

BRENT C. JAMES, Chief Quality Officer, Intermountain Healthcare

MICHAEL M. E. JOHNS, Chancellor, Emory University

CRAIG JONES, Director, Vermont Blueprint for Health

GARY KAPLAN, Chairman and Chief Executive Officer, Virginia Mason Health System

DARRELL G. KIRCH, President and Chief Executive Officer, AAMC

RICHARD C. LARSON, Mitsui Professor, Massachusetts Institute of Technology

JAMES L. MADARA, Chief Executive Officer, American Medical Association

MARY D. NAYLOR, Director, NewCourtland Center, University of Pennsylvania

FARZAD MOSTASHARI, National Coordinator, Office of the National Coordinator for Health Information Technology (Ex Officio)

WILLIAM D. NOVELLI, Former Chief Executive Officer, AARP; Professor, Georgetown University

SAM R. NUSSBAUM, Chief Medical Officer, WellPoint, Inc.

JONATHAN B. PERLIN, Chief Medical Officer, HCA, Inc.

ROBERT A. PETZEL, Under Secretary for Health, Department of Veterans Affairs (Ex Officio)

RICHARD PLATT, Chair, Population Medicine, Harvard Medical School

JOHN W. ROWE, Former Chairman and Chief Executive Officer, Aetna; Professor, Columbia University

_____________________

1Institute of Medicine forums and roundtables do not issue, review, or approve individual documents. The responsibility for the published workshop summary rests with the institution.

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Suggested Citation:"Front Matter." Institute of Medicine. 2014. Partnering with Patients to Drive Shared Decisions, Better Value, and Care Improvement: Workshop Proceedings. Washington, DC: The National Academies Press. doi: 10.17226/18397.
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JOE V. SELBY, Executive Director, Patient-Centered Outcomes Research Institute

MARK D. SMITH, President and Chief Executive Officer, California HealthCare Foundation

GLENN D. STEELE, President and Chief Executive Officer, Geisinger Health System

MARILYN TAVENNER, Administrator, Centers for Medicare & Medicaid Services (Ex Officio) (designee: Patrick Conway)

REED V. TUCKSON, Former Executive Vice President, UnitedHealth Group; Managing Director, Tuckson Health

MARY WAKEFIELD, Administrator, Health Resources and Services Administration (Ex Officio)

DEBRA B. WHITMAN, Executive Vice President, Policy and International, AARP

JONATHAN WOODSON, Assistant Secretary for Health Affairs, Department of Defense (Ex Officio)

Suggested Citation:"Front Matter." Institute of Medicine. 2014. Partnering with Patients to Drive Shared Decisions, Better Value, and Care Improvement: Workshop Proceedings. Washington, DC: The National Academies Press. doi: 10.17226/18397.
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Suggested Citation:"Front Matter." Institute of Medicine. 2014. Partnering with Patients to Drive Shared Decisions, Better Value, and Care Improvement: Workshop Proceedings. Washington, DC: The National Academies Press. doi: 10.17226/18397.
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The Institute of Medicine's Roundtable on Value & Science-Driven Health Care held a workshop, titled Partnering with Patients to Drive Shared Decisions, Better Value, and Care Improvement, on February 25 and 26, 2013. The workshop, supported by the Gordon and Betty Moore Foundation and the Blue Shield of California Foundation, focused on identifying and exploring issues, attitudes, and approaches to increasing patient engagement in and demand for the following: shared decision making and better communication about the evidence in support of testing and treatment options; the best value from the health care they receive; and the use of data generated in the course of their care experience for care improvement.

The workshop hoped to build awareness and demand from patients and families for better care at lower costs and to create a health care system that continuously learns and improves. Participants included members of the medical, clinical research, health care services research, regulatory, health care economics, behavioral economics, health care delivery, payer, and patient communities. Partnering with Patients to Drive Shared Decisions, Better Value, and Care Improvement Workshop Proceedings offers a summary of the 2-day workshop including the workshop agenda and biographies of speakers.

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