National Academies Press: OpenBook
« Previous: Appendix B: Biographical Sketches of Workshop Speakers and Planning Committee Members
Suggested Citation:"Appendix C: Workshop Participants." Institute of Medicine. 2014. Partnering with Patients to Drive Shared Decisions, Better Value, and Care Improvement: Workshop Proceedings. Washington, DC: The National Academies Press. doi: 10.17226/18397.
×

Appendix C
Workshop Participants

Partnering with Patients to Drive Shared Decisions, Better Value, and Care Improvement

Terry Adirim, MD, MPH

Director, Office of Special Health Affairs

Health Resources and Services

Administration

Charles Alston

Senior Vice President and Director of Public

Affairs

MSL Washington

Clinton W. Anderson, PhD, Director

Associate Executive Director, Public Interest

Directorate

Lesbian, Gay, Bisexual, and Transgender Concerns Office

American Psychological Association

David Arterburn, MD, MPH

Associate Investigator

Group Health Research Institute

Anne-Marie J. Audet, MD, MSc, SM

Vice President

Health System Quality and Efficiency

The Commonwealth Fund

Kim Bailey

Research Director

Families USA

Michael J. Barry, MD

President

Informed Medical Decisions Foundation

Christine Bechtel, MA

Vice President

National Partnership for Women & Families

Jeffrey Belkora, PhD

Associate Professor, Surgery and Health

Policy

Director, Decision Services

University of California, San Francisco

Greg Biggers

Council Member and CEO, Genomera

Genetic Alliance

Paige Bingham

Manager

PatientLink Programs

Medtronic Foundation

Meryl Bloomrosen, MBA

Vice President

Public Policy and Government Relations

American Medical Informatics Association

David Blumenthal, MD, MPP

President

The Commonwealth Fund

Suggested Citation:"Appendix C: Workshop Participants." Institute of Medicine. 2014. Partnering with Patients to Drive Shared Decisions, Better Value, and Care Improvement: Workshop Proceedings. Washington, DC: The National Academies Press. doi: 10.17226/18397.
×

Marilyn Sue Bogner, PhD

Chief Scientist

Institute for the Study of Human Error, LLC

Crystal Brown-Tatum

Chapter President

Sisters Network

Diane Bruessow, PA-C, DFAAPA

Government Affairs Committee, Chair, 2012-13

Gay and Lesbian Medical Association

Janet Campbell

Software Developer

Epic Systems

Dottie Caplan, MBA

Director, Partners in Patient Health

Sanofi U.S.

Kristin L. Carman, PhD

Co-Director

Health Policy & Research Program

American Institutes for Research

Carolyn Carroll, PhD

Senior Statistician

STAT Tech, Inc.

Mary Teresa Casey, RD, LD

Director, Division of ESRD,

Population and Community Health

Center for Clinical Standards and Quality

Centers for Medicare & Medicaid Services

Bowen Chung, MD, MSHS

Adjunct Scientist, RAND Corporation

Assistant Professor, Department of

Psychiatry Harbor-UCLA Medical Center

David Clifford

Independent Consultant

PatientsLikeMe

Perry D. Cohen, PhD

Director

Parkinson Pipeline Project

Megan Collado, MPH

Associate, Health Care Financing and

Organization

AcademyHealth

Kathleen Connors de Laguna, RN, MSPH

Health Insurance Specialist

Office of Electronic Health, Standards and Systems

Centers for Medicare & Medicaid Services

Richard Conroy, PhD

Program Director

Division of Applied Science and Technology

National Institute of Biomedical Imaging and

Bioengineering

Jonathan Darer, MD, MPH

Chief Innovation Officer

Division of Clinical Innovation

Geisinger Health System

Helen Darling

President

National Business Group on Health

Kathy Day, RN

Patient Safety Advocate and Activist

Dave DeBronkart

e-Patient Dave

James E. Delaney, MSPA PA-C President

American Academy of Physician Assistants

Suggested Citation:"Appendix C: Workshop Participants." Institute of Medicine. 2014. Partnering with Patients to Drive Shared Decisions, Better Value, and Care Improvement: Workshop Proceedings. Washington, DC: The National Academies Press. doi: 10.17226/18397.
×

Melissa Dorsey, MHA

Health Insurance Specialist/Government Task Leader

Division of ESRD Population and Community Health

Center for Clinical Standards & Quality

Centers for Medicare & Medicaid Services

Joyce Dubow

Senior Health Care Reform Director

Office of Policy and Strategy

AARP

Rosemarie Filart, MD, MPH, MBA

Medical Officer

National Center for Advancing Translational Science

National Institutes of Health

Sylvia K. Fisher, PhD

Director, Office of Research and Evaluation

Office of the Administrator

Health Resources and Services

Administration

Lindsay Forbes

Research Program Coordinator

Johns Hopkins Berman Institute of Bioethics

Laura P. Forsythe, PhD, MPH

Program Officer

Patient-Centered Outcomes Research

Institute

Emily C. Freeman, MSc, PhD

Associate Director

U.S. Medical-Health Services

Bristol-Myers Squibb

Susan M. Friedman

Deputy Director, Department of Government Relations

American Osteopathic Association

Dominick L. Frosch, PhD

Fellow, Patient Care Program

Gordon and Betty Moore Foundation

Tamyra C. Garcia, MPH

Special Assistant, Quality Improvement Group

Center for Clinical Standards and Quality

Centers for Medicare & Medicaid Services

John S. Gardenier, DBA

Statistical Ethicist

National Center for Health Statistics, Retired

Turkan K. Gardenier, PhD

Director of Research

Pragmatica Corporation

Rosemary Gibson

Section Editor

JAMA Internal Medicine

Marge Ginsburg

Executive Director

Center for Healthcare Decisions

David Goldhill

President and Chief Executive Officer

Game Show Network

Mark Gorman

Patient Advocate

Former Director of Survivorship Policy

National Coalition for Cancer Survivorship

Elizabeth Goss, JD

Partner

Turner & Goss

Katherine Green

Development Project Coordinator

Family Medicine Education Consortium

Suggested Citation:"Appendix C: Workshop Participants." Institute of Medicine. 2014. Partnering with Patients to Drive Shared Decisions, Better Value, and Care Improvement: Workshop Proceedings. Washington, DC: The National Academies Press. doi: 10.17226/18397.
×

Sheldon Greenfield, MD

Professor of Medicine and Executive Co-Director

Health Policy Research Institute

University of California, Irvine

Paul Grundy, MD, MPH

Global Director of Healthcare

Transformation

IBM

Jim Hansen

Vice President

Accountable Delivery System Institute

Lumeris

Judith H. Hibbard, DrPH

Professor of Health Policy

Department of Planning, Public Policy & Management

University of Oregon

Eric Holmboe, MD

Chief Medical Officer and Senior Vice President

American Board of Internal Medicine

Lisa Hopp, PhD, RN, FAAN

Professor, School of Nursing

Director, Indiana Center for Evidence-Based

Nursing Practice

Purdue University Calumet

Ralph I. Horwitz, MD

Senior Vice President

Clinical Sciences Evaluation

GlaxoSmithKline

Linda House, RN, BSN, MSM

Executive Vice President, External Affairs

Cancer Support Community

Andrew Hu

Senior Director

Policy & Research

PhRMA

Thomas E. Hubbard

Vice President of Policy Research

Network for Excellence in Health Innovation

Holly B. Jimison, PhD, FACMI

Office of Behavioral and Social Sciences Research

Office of the Director

National Institutes of Health

Jesse Joad, MD, MS

Professor Emeritus,

University of California, Davis

Vice President for Education,

Gay and Lesbian Medical Association

Sherrie H. Kaplan, PhD

Executive Co-Director

Health Policy Research Institute

University of California, Irvine

Nancy E. Kass, ScD

Professor of Bioethics and Public Health

Berman Institute of Bioethics

Johns Hopkins Bloomberg School of Public Health

Michael W. Kelleher

Senior Program Director

Network for Excellence in Health Innovation

Barbara L. Kornblau, JD, OTR

Executive Director

Society for Participatory Medicine

Gary Langer

Founder and President

Langer Research Associates

Emily Oshima Lee

Policy Analyst, Health Policy

Center for American Progress

Suggested Citation:"Appendix C: Workshop Participants." Institute of Medicine. 2014. Partnering with Patients to Drive Shared Decisions, Better Value, and Care Improvement: Workshop Proceedings. Washington, DC: The National Academies Press. doi: 10.17226/18397.
×

Alice Leiter, JD

Policy Counsel

Center for Democracy & Technology

Art Levin, MPH

Director

Center for Medical Consumers

Grace Lin, MD

Assistant Professor in Residence, Division of General Internal Medicine

University of California, San Francisco

Cristin Lind

Family Leader

E-caregiver, www.DurgasToolbox.com

Federation for Children with Special Needs

Evette J. Ludman, PhD

Senior Research Associate

Group Health Research Institute

Wendy Lynch, PhD

Co-Director

Center for Consumer Choice in Health Care

Altarum Institute

Katy Mahraj, MSI

Analyst, Information & Technology Strategies

Altarum Institute

Kenneth D. Mandl, MD, MPH

Associate Professor

Children’s Hospital Boston, Harvard

Medical School, and Harvard-MIT Health

Sciences and Technology

Brigitte Manteuffel, PhD

Advisory Council Member

Children’s Mental Health Network

Peter Margolis, MD, PhD

Professor of Pediatrics and Director of Research

James M. Anderson Center for Health Systems Excellence

Cincinnati Children’s Hospital Medical Center

J. Michael McGinnis, MD, MPP, MA

Senior Scholar

Institute of Medicine

Coles Markis Mercier, MS

Health Insurance Specialist, BHIS

Center for Clinical Standards and Quality

Centers for Medicare & Medicaid Services

Anne Michaels

President, MNA Inc.

Special Projects, National Foundation for Mental Health

Erica Mobley

Communications & Membership Manager

The Leapfrog Group

Victor M. Montori, MD, MSc

Professor of Medicine and Director, Healthcare Delivery Research Program

Divisions of Endocrinology and Diabetes and Health Care and Policy Research

Mayo Clinic

Liz Morgan

Head of Community

PatientsLikeMe

Linda M. Morgan, MBA, RPh

Research Advocate

Parkinson’s Disease Foundation

Nancy Morris

Communications and Member Services Director

Maine Health Management Coalition

Suggested Citation:"Appendix C: Workshop Participants." Institute of Medicine. 2014. Partnering with Patients to Drive Shared Decisions, Better Value, and Care Improvement: Workshop Proceedings. Washington, DC: The National Academies Press. doi: 10.17226/18397.
×

Ben Moulton, JD, MPH

Senior Legal Advisor

Informed Medical Decisions Foundation

Michael (Mick) D. Murray, PharmD, MPH

Professor

Regenstrief Institute and Purdue University

Shelley Fuld Nasso

Health Policy Consultant

National Coalition for Cancer Survivorship

Daniel Nugent, Esq.

Senior Policy Manager

National Minority AIDS Council

Ekene Obi-Okoye

Premedical Intern, Decision Services

University of California, San Francisco

Sally Okun, RN, MMHS

Vice President, Advocacy, Policy & Patient Safety

PatientsLikeMe

Lyn Paget, MPH

Managing Partner

Health Policy Partners

Jumin Park

PhD Candidate, Nursing

University of Maryland, Baltimore

Douglas W. Phillips

Caregiver

Laura M. Phillips

Patient

PatientsLikeMe

William F. Pilkington

Chief Executive Officer

Cabarrus Health Alliance

Jill Mara Plevinsky, MA

Clinical Research Coordinator, Center for Inflammatory Bowel Disease

Boston Children’s Hospital

Chair, The Patient Advisory Council for ImproveCareNow and C3N Project

Cincinnati Children’s Hospital

Holly Potter

Vice President, Brand Communication

Kaiser Permanente

Barbra G. Rabson

Executive Director

Massachusetts Health Quality Partners

Susan C. Reinhard, RN, PhD

Director

Public Policy Institute

AARP

Lygeia Ricciardi, EdM

Acting Director, Office of Consumer eHealth

Office of the National Coordinator for Health Information Technology

Pamela Rich, MPH

Senior Analyst

Institute on Health Care Costs and Solutions

National Business Group on Health

Bob Roehr

Reporter

BMJ

Susan W. Salmond, EdD, RN, ANEF, FAAN

Dean and Professor

UMDNJ–School of Nursing

John Santa, MD, MPH

Director

Consumer Reports Health Ratings Center

Consumer Reports

Suggested Citation:"Appendix C: Workshop Participants." Institute of Medicine. 2014. Partnering with Patients to Drive Shared Decisions, Better Value, and Care Improvement: Workshop Proceedings. Washington, DC: The National Academies Press. doi: 10.17226/18397.
×

Suzanne Schrandt, JD

Deputy Director, Patient Engagement

Patient-Centered Outcomes Research Institute

Susan Sheridan, MBA, MIM

Director, Patient Engagement

Patient-Centered Outcomes Research Institute

Joanna E. Siegel, SD

Senior Health Research Scientist

Agency for Healthcare Research and Quality

Melissa A. Simon, MD, MPH

Director of Patient Navigation

Lurie Comprehensive Cancer Center

Northwestern University

Brad Smith

Co-Director

Center for Consumer Choice in Health Care

Altarum Institute

Mary Smith, MSHS

Guidelines Analyst

American Society for Radiation Oncology

Shoshanna Sofaer, MD, DrPH

Professor and Robert P. Luciano Chair of Health Care Policy

School of Public Affairs

Baruch College/City University of New York

Mary Anne Sterling, CEA

Principal Consultant

Sterling Health IT Consulting

Ellen Stovall

Senior Health Policy Advisor

National Coalition for Cancer Survivorship

Danielle Tarino

Public Health Advisor

Performance Measurement Branch

Substance Abuse and Mental Health Services Administration

Richard Thomason, MA

Director, Health Care and Coverage

Blue Shield of California Foundation

Veronica Todaro, MPH

Director of National Programs

Parkinson’s Disease Foundation

Amy Traver

Villers Fellow

Familes USA

Susan Brown Trinidad, MA

Research Scientist, Center for Genomics & Healthcare Equality

Department of Bioethics & Humanities

University of Washington

Tresa Undem

Partner

PerryUndem

George Velasco

Guidelines Analyst

American Society for Radiation Oncology

Kevin Volpp, MD, PhD

Staff Physician, Philadelphia VA Medical Center

Director, Center for Health Incentives and Behavioral Economics

Leonard Davis Institute

University of Pennsylvania

Lola A. Walker

Technical Officer, Community Mobilization

Program Innovation and Policy Unit

Elizabeth Glaser Pediatric AIDS Foundation

Suggested Citation:"Appendix C: Workshop Participants." Institute of Medicine. 2014. Partnering with Patients to Drive Shared Decisions, Better Value, and Care Improvement: Workshop Proceedings. Washington, DC: The National Academies Press. doi: 10.17226/18397.
×

Sandy Walsh

President

California Breast Cancer Organizations

Jonathan Welch, MD

Instructor in Medicine

Research Scientist

Brigham and Women’s Hospital

Ross White

Public Policy Associate

The Hastings Center

Daniel Wolfson

Executive Vice President and Chief Operating Officer

American Board of Internal Medicine Foundation

Matthew K. Wynia, MD, MPH, FACP

Director, Physician Engagement for

Improving Health Outcomes

American Medical Association

Kelly Young

Rheumatoid Arthritis Warrior

Margot Zarin-Pass

Medical Student

University of California, San Francisco

IOM Staff

Daniel Bethea

Web Content Assistant

Claudia Grossmann, PhD

Senior Program Officer

Elizabeth Johnston

Program Assistant

Valerie Rohrbach

Senior Program Assistant

Julia Sanders

Senior Program Assistant

Robert Saunders

Senior Program Officer

Barret Zimmermann

Program Assistant

Suggested Citation:"Appendix C: Workshop Participants." Institute of Medicine. 2014. Partnering with Patients to Drive Shared Decisions, Better Value, and Care Improvement: Workshop Proceedings. Washington, DC: The National Academies Press. doi: 10.17226/18397.
×
Page 197
Suggested Citation:"Appendix C: Workshop Participants." Institute of Medicine. 2014. Partnering with Patients to Drive Shared Decisions, Better Value, and Care Improvement: Workshop Proceedings. Washington, DC: The National Academies Press. doi: 10.17226/18397.
×
Page 198
Suggested Citation:"Appendix C: Workshop Participants." Institute of Medicine. 2014. Partnering with Patients to Drive Shared Decisions, Better Value, and Care Improvement: Workshop Proceedings. Washington, DC: The National Academies Press. doi: 10.17226/18397.
×
Page 199
Suggested Citation:"Appendix C: Workshop Participants." Institute of Medicine. 2014. Partnering with Patients to Drive Shared Decisions, Better Value, and Care Improvement: Workshop Proceedings. Washington, DC: The National Academies Press. doi: 10.17226/18397.
×
Page 200
Suggested Citation:"Appendix C: Workshop Participants." Institute of Medicine. 2014. Partnering with Patients to Drive Shared Decisions, Better Value, and Care Improvement: Workshop Proceedings. Washington, DC: The National Academies Press. doi: 10.17226/18397.
×
Page 201
Suggested Citation:"Appendix C: Workshop Participants." Institute of Medicine. 2014. Partnering with Patients to Drive Shared Decisions, Better Value, and Care Improvement: Workshop Proceedings. Washington, DC: The National Academies Press. doi: 10.17226/18397.
×
Page 202
Suggested Citation:"Appendix C: Workshop Participants." Institute of Medicine. 2014. Partnering with Patients to Drive Shared Decisions, Better Value, and Care Improvement: Workshop Proceedings. Washington, DC: The National Academies Press. doi: 10.17226/18397.
×
Page 203
Suggested Citation:"Appendix C: Workshop Participants." Institute of Medicine. 2014. Partnering with Patients to Drive Shared Decisions, Better Value, and Care Improvement: Workshop Proceedings. Washington, DC: The National Academies Press. doi: 10.17226/18397.
×
Page 204
Partnering with Patients to Drive Shared Decisions, Better Value, and Care Improvement: Workshop Proceedings Get This Book
×
Buy Paperback | $50.00 Buy Ebook | $39.99
MyNAP members save 10% online.
Login or Register to save!
Download Free PDF

The Institute of Medicine's Roundtable on Value & Science-Driven Health Care held a workshop, titled Partnering with Patients to Drive Shared Decisions, Better Value, and Care Improvement, on February 25 and 26, 2013. The workshop, supported by the Gordon and Betty Moore Foundation and the Blue Shield of California Foundation, focused on identifying and exploring issues, attitudes, and approaches to increasing patient engagement in and demand for the following: shared decision making and better communication about the evidence in support of testing and treatment options; the best value from the health care they receive; and the use of data generated in the course of their care experience for care improvement.

The workshop hoped to build awareness and demand from patients and families for better care at lower costs and to create a health care system that continuously learns and improves. Participants included members of the medical, clinical research, health care services research, regulatory, health care economics, behavioral economics, health care delivery, payer, and patient communities. Partnering with Patients to Drive Shared Decisions, Better Value, and Care Improvement Workshop Proceedings offers a summary of the 2-day workshop including the workshop agenda and biographies of speakers.

  1. ×

    Welcome to OpenBook!

    You're looking at OpenBook, NAP.edu's online reading room since 1999. Based on feedback from you, our users, we've made some improvements that make it easier than ever to read thousands of publications on our website.

    Do you want to take a quick tour of the OpenBook's features?

    No Thanks Take a Tour »
  2. ×

    Show this book's table of contents, where you can jump to any chapter by name.

    « Back Next »
  3. ×

    ...or use these buttons to go back to the previous chapter or skip to the next one.

    « Back Next »
  4. ×

    Jump up to the previous page or down to the next one. Also, you can type in a page number and press Enter to go directly to that page in the book.

    « Back Next »
  5. ×

    Switch between the Original Pages, where you can read the report as it appeared in print, and Text Pages for the web version, where you can highlight and search the text.

    « Back Next »
  6. ×

    To search the entire text of this book, type in your search term here and press Enter.

    « Back Next »
  7. ×

    Share a link to this book page on your preferred social network or via email.

    « Back Next »
  8. ×

    View our suggested citation for this chapter.

    « Back Next »
  9. ×

    Ready to take your reading offline? Click here to buy this book in print or download it as a free PDF, if available.

    « Back Next »
Stay Connected!