Bernard Rosof, M.D., Chair, Roundtable on Health Literacy

8:40-9:00 a.m.

Communication from the Genomic Era to Precision Medicine

Joseph D. McInerney, M.A., M.S.

Executive Vice President

American Society of Human Genetics

9:00-10:30 a.m.

The Intersection of Health Literacy and Precision Medicine

9:00-9:05

Introduction of speakers

Ruth Parker, M.D. (moderator)

Professor of Medicine, Pediatrics, and Public Health

Emory University School of Medicine

9:05-9:20

What is precision medicine and how has it evolved over time?

Sara Van Driest, M.D., Ph.D.

Assistant Professor of Pediatrics

Vanderbilt University School of Medicine

9:20-9:35

What is health literacy and how has it evolved over time?

William Elwood, Ph.D.

Office of Behavioral and Social Sciences Research National Institutes of Health

9:35-9:50

Issues at the intersection of precision medicine and health literacy?

Michael S. Wolf, Ph.D., M.A., M.P.H.

Professor, Medicine and Learning Sciences

Feinberg School of Medicine

Northwestern University

9:50-10:30

Discussion (to include McInerney)

10:30-10:45 a.m.

BREAK

10:45 a.m.-12:30 p.m.

Health Literacy in Precision Medicine Research

10:45-10:50

Introduction of speakers

Laurie Myers, M.B.A. (moderator)

Global Health Literacy Director

Merck & Co., Inc.

10:50-11:05

Recruitment and messages (include privacy and informed consent)

Suzanne Bakken, R.N., Ph.D.

Alumni Professor of Nursing and

Professor of Biomedical Informatics

Columbia University

11:05-11:20

Engagement and retention

Consuelo Wilkins, M.D., MSCI

Executive Director

Meharry–Vanderbilt Alliance

11:20-11:35

Results reporting

Paul S. Appelbaum, M.D.

Elizabeth K. Dollard Professor of Psychiatry, Medicine, and Law

Director, Division of Law, Ethics, and Psychiatry Columbia University

11:35-11:45

Reactions

Health Literacy Reactor:

Marin P. Allen, Ph.D.

National Institutes of Health

Precision Medicine Reactor:

Benjamin Solomon

Inova Translational Medicine Institute

11:45-12:30

Discussion

12:30-1:30 p.m.

LUNCH

1:30-3:00 p.m.

Communicating Risk and Uncertainty in the Clinical Setting

1:30-1:35

Introduction of speakers

Laurie Francis, M.P.H. (moderator)

Senior Director of Clinic Operations and Quality Oregon Primary Care Association

1:35-1:50

Communicating for understanding

Lori Erby, Ph.D.

Associate Program Director

Johns Hopkins University/

National Human Genome Research Institute Genetic Counseling Training Program

1:50-2:05

Communicating risk to low health literacy populations

Jessica Ancker, Ph.D.

Associate Professor of Healthcare Policy and Research

Weill Cornell Medical College

2:05-2:15

Reactions

Health Literacy Reactor:

Terry Davis, Ph.D.

Louisiana State University Health Sciences Center

Precision Medicine Reactor:

Cathy Wicklund, M.S.

Feinberg School of Medicine

Northwestern University

2:15-3:00

Discussion

3:00-3:15 p.m.

BREAK

3:15-4:45 p.m.

Communicating with the Public

3:15-3:20

Introduction of speakers

Catina O’Leary, Ph.D., LMSW (moderator)

President and CEO

Health Literacy Missouri

3:20-3:35

The role of health associations

Kathleen Hickey, Ed.D., FNP, ANP, FAHA, FAAN

Associate Professor of Nursing

Columbia University Medical Center

3:35-3:50

Precision medicine in social media

Chris Gunter, Ph.D.

Director of Communication Operations

Children’s Healthcare of Atlanta’s

Marcus Autism Center

3:50-4:00

Reactions

Health Literacy Reactor:

Jennifer Dillaha, M.D.

Arkansas Department of Health

Precision Medicine Reactor:

Carla Easter, Ph.D.

National Human Genome Research Institute

National Institutes of Health

4:00-4:45

Discussion

4:45-5:30 p.m.

Reflections on the Day

5:30 p.m.

ADJOURN