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Suggested Citation:"Appendix A: Public Session Agendas." National Academies of Sciences, Engineering, and Medicine. 2018. Opportunities for Improving Programs and Services for Children with Disabilities. Washington, DC: The National Academies Press. doi: 10.17226/25028.
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Appendix A

Public Session Agendas

MEETING 1: PUBLIC SESSION

Hosted by the Committee on Improving Health
Outcomes for Children with Disabilities

November 17, 2016
10:30 a.m.–2:30 p.m.
Keck Center of the National Academies
Room 103
500 Fifth Street, NW
Washington, DC 20001

Agenda

10:30 a.m. Welcome and Introductions
Amy Houtrow, M.D., Ph.D., M.P.H., Committee Chair
10:40 a.m. The Charge to the Committee
Susan Wilschke, Acting Associate Commissioner, Office of Research, Demonstration, and Employment Support
Joanna Firmin, Contracting Officer’s Technical Representative, Office of Disability Policy
Joyanne Cobb, Analyst/Project Officer, Office of Research, Demonstration, and Employment Support
Suggested Citation:"Appendix A: Public Session Agendas." National Academies of Sciences, Engineering, and Medicine. 2018. Opportunities for Improving Programs and Services for Children with Disabilities. Washington, DC: The National Academies Press. doi: 10.17226/25028.
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11:00 a.m. Discussion of Statement of Task
Committee Members and Social Security Administration Staff
1:00 p.m. Maternal and Child Health Bureau (MCHB) Programs
Debra Waldron, Director, Division of Services for Children with Special Health Needs, MCHB
Michele Lawler, Director, Division of State and Community Health, MCHB
1:30 p.m. Discussion
2:20 p.m. Public Comment
2:25 p.m. Summary and Closing Remarks
Amy Houtrow, Committee Chair
2:30 p.m. Adjourn Public Session

MEETING 2: PUBLIC SESSION

Hosted by the Committee on Improving Health
Outcomes for Children with Disabilities

February 2, 2017
9:00 a.m.–4:15 p.m.
Keck Center of the National Academies
Room 208
500 Fifth Street, NW
Washington, DC 20001

Agenda

8:45 a.m. Welcome and Introductions
Amy Houtrow, M.D., Ph.D., M.P.H., Committee Chair
8:50 a.m. Vocational Rehabilitation and Special Education in Transition
Laura Owens, Ph.D., CESP, President, TransCen
Suggested Citation:"Appendix A: Public Session Agendas." National Academies of Sciences, Engineering, and Medicine. 2018. Opportunities for Improving Programs and Services for Children with Disabilities. Washington, DC: The National Academies Press. doi: 10.17226/25028.
×
Supported Employment and Transition for Youth with Autism Spectrum Disorders
Carol M. Schall, Ph.D., Assistant Professor, Principal Investigator
Rehabilitation Research and Training Center, Virginia Commonwealth University
9:30 a.m. Discussion
10:00 a.m. New York PROMISE Grant Program
Arun Karpur, M.D., M.P.H., Extension Faculty; Yang Tan Institute on Employment and Disability, School of Industrial and Labor Relations, Cornell University
ASPIRE (Multi-State Consortium PROMISE Grant Program)
Carol Ruddell, M.A., Project Director, Achieving Success by Promoting Readiness in Employment and Education Consortium (ASPIRE) – Funded by the Promoting Readiness of Minors in Supplemental Security Income (PROMISE) grant program
Marriott Foundation’s Bridges from School to Work
Allen Brown, B.A., Managing Director of Operations, Bridges from School to Work, a program of the Marriott Foundation for People with Disabilities
10:45 a.m. Discussion
12:15 p.m. (Lunch Presentation) Juvenile Justice Systems and Children with Disabilities
Peter Leone, Ph.D., Professor, College of Education, University of Maryland
1:35 p.m. SAMHSA and Systems of Care
Gary Blau, Ph.D., Chief of Child, Adolescent and Family Branch, Center for Mental Health Services, Substance Abuse and Mental Health Services Administration; Kirsten Painter, Ph.D., L.C.S.W., Public Health Analyst, Center for Mental Health Services, Substance Abuse and Mental Health Services Administration
Suggested Citation:"Appendix A: Public Session Agendas." National Academies of Sciences, Engineering, and Medicine. 2018. Opportunities for Improving Programs and Services for Children with Disabilities. Washington, DC: The National Academies Press. doi: 10.17226/25028.
×
2:05 p.m. Discussion
2:50 p.m. Youth and Family Perspectives
Rylin Rodgers, Family Leader, Indiana University
Darcy Gruttadaro, Director, National Alliance on Mental Illness
Johanna Bergan, Executive Director, YouthMOVE
3:10 p.m. Discussion
4:15 p.m. Adjourn Public Session

MEETING 3: PUBLIC SESSION

Hosted by the Committee on Improving Health
Outcomes for Children with Disabilities

April 6, 2017
10:15 a.m.–3:35 p.m.
National Academy of Sciences
Room 120
2101 Constitution Avenue, NW
Washington, DC 20418

Agenda

10:15 a.m. Welcome and Introductions
Amy Houtrow, M.D., Committee Chair
10:30 a.m. Childhood Disability and its Impacts on and of the Family
Susan Parish, Ph.D., MSW, Dean, Bouve College of Health, Northeastern University
11:30 a.m. The Role of School Nurses in Improving Health Outcomes for Children with Disabilities
Linda Wolfe, Ed.D., RN, Director, School Support Services, Delaware Department of Education
1:30 p.m. National Technical Assistance Center on Transition (NTACT) Evidence Based Practices/Rating System
Catherine Fowler, Ph.D., Project Coordinator, NTACT
Suggested Citation:"Appendix A: Public Session Agendas." National Academies of Sciences, Engineering, and Medicine. 2018. Opportunities for Improving Programs and Services for Children with Disabilities. Washington, DC: The National Academies Press. doi: 10.17226/25028.
×
2:30 p.m. Foster Care Youth with Disabilities
Laurie Powers, Ph.D., Emeritus Professor and Research Professor, Regional Research Institute, Portland State University
3:35 p.m. Adjourn Public Session
Suggested Citation:"Appendix A: Public Session Agendas." National Academies of Sciences, Engineering, and Medicine. 2018. Opportunities for Improving Programs and Services for Children with Disabilities. Washington, DC: The National Academies Press. doi: 10.17226/25028.
×

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Suggested Citation:"Appendix A: Public Session Agendas." National Academies of Sciences, Engineering, and Medicine. 2018. Opportunities for Improving Programs and Services for Children with Disabilities. Washington, DC: The National Academies Press. doi: 10.17226/25028.
×
Page 277
Suggested Citation:"Appendix A: Public Session Agendas." National Academies of Sciences, Engineering, and Medicine. 2018. Opportunities for Improving Programs and Services for Children with Disabilities. Washington, DC: The National Academies Press. doi: 10.17226/25028.
×
Page 278
Suggested Citation:"Appendix A: Public Session Agendas." National Academies of Sciences, Engineering, and Medicine. 2018. Opportunities for Improving Programs and Services for Children with Disabilities. Washington, DC: The National Academies Press. doi: 10.17226/25028.
×
Page 279
Suggested Citation:"Appendix A: Public Session Agendas." National Academies of Sciences, Engineering, and Medicine. 2018. Opportunities for Improving Programs and Services for Children with Disabilities. Washington, DC: The National Academies Press. doi: 10.17226/25028.
×
Page 280
Suggested Citation:"Appendix A: Public Session Agendas." National Academies of Sciences, Engineering, and Medicine. 2018. Opportunities for Improving Programs and Services for Children with Disabilities. Washington, DC: The National Academies Press. doi: 10.17226/25028.
×
Page 281
Suggested Citation:"Appendix A: Public Session Agendas." National Academies of Sciences, Engineering, and Medicine. 2018. Opportunities for Improving Programs and Services for Children with Disabilities. Washington, DC: The National Academies Press. doi: 10.17226/25028.
×
Page 282
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Although the general public in the United States assumes children to be generally healthy and thriving, a substantial and growing number of children have at least one chronic health condition. Many of these conditions are associated with disabilities and interfere regularly with children’s usual activities, such as play or leisure activities, attending school, and engaging in family or community activities. In their most severe forms, such disorders are serious lifelong threats to children’s social, emotional well-being and quality of life, and anticipated adult outcomes such as for employment or independent living. However, pinpointing the prevalence of disability among children in the U.S. is difficult, as conceptual frameworks and definitions of disability vary among federal programs that provide services to this population and national surveys, the two primary sources for prevalence data.

Opportunities for Improving Programs and Services for Children with Disabilities provides a comprehensive analysis of health outcomes for school-aged children with disabilities. This report reviews and assesses programs, services, and supports available to these children and their families. It also describes overarching program, service, and treatment goals; examines outreach efforts and utilization rates; identifies what outcomes are measured and how they are reported; and describes what is known about the effectiveness of these programs and services.

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