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Suggested Citation:"Appendix A Public Session Agendas." National Academies of Sciences, Engineering, and Medicine. 2018. Opportunities for Improving Programs and Services for Children with Disabilities. Washington, DC: The National Academies Press. doi: 10.17226/25028.
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Page 227
Suggested Citation:"Appendix A Public Session Agendas." National Academies of Sciences, Engineering, and Medicine. 2018. Opportunities for Improving Programs and Services for Children with Disabilities. Washington, DC: The National Academies Press. doi: 10.17226/25028.
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Page 228
Suggested Citation:"Appendix A Public Session Agendas." National Academies of Sciences, Engineering, and Medicine. 2018. Opportunities for Improving Programs and Services for Children with Disabilities. Washington, DC: The National Academies Press. doi: 10.17226/25028.
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Page 229
Suggested Citation:"Appendix A Public Session Agendas." National Academies of Sciences, Engineering, and Medicine. 2018. Opportunities for Improving Programs and Services for Children with Disabilities. Washington, DC: The National Academies Press. doi: 10.17226/25028.
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Page 230

Below is the uncorrected machine-read text of this chapter, intended to provide our own search engines and external engines with highly rich, chapter-representative searchable text of each book. Because it is UNCORRECTED material, please consider the following text as a useful but insufficient proxy for the authoritative book pages.

Appendix A Public Session Agendas MEETING 1: PUBLIC SESSION Hosted by the Committee on Improving Health Outcomes for Children with Disabilities November 17, 2016 10:30 a.m.–2:30 p.m. Keck Center of the National Academies Room 103 500 Fifth Street NW Washington, DC 20001 Agenda 10:30 a.m. Welcome and Introductions Amy Houtrow, M.D., Ph.D., M.P.H., Committee Chair 10:40 a.m. The Charge to the Committee Susan Wilschke, Acting Associate Commissioner, Office of Research, Demonstration, and Employment Support Joanna Firmin, Contracting Officer’s Technical Representative, Office of Disability Policy Joyanne Cobb, Analyst/Project Officer, Office of Research, Demonstration, and Employment Support 11:00 a.m. Discussion of Statement of Task Committee Members and Social Security Administration Staff 1:00 p.m. Maternal and Child Health Bureau (MCHB) Programs Debra Waldron, Director, Division of Services for Children with Special Health Needs, MCHB Michele Lawler, Director, Division of State and Community Health, MCHB 1:30 p.m. Discussion 2:20 p.m. Public Comment A-1 PREPUBLICATION COPY: UNCORRECTED PROOFS

A-2 IMPROVING PROGRAMS AND SERVICES FOR CHILDREN WITH DISABILITIES 2:25 p.m. Summary and Closing Remarks Amy Houtrow, Committee Chair 2:30 p.m. Adjourn Public Session MEETING 2: PUBLIC SESSION Hosted by the Committee on Improving Health Outcomes for Children with Disabilities February 2, 2017 9:00 a.m.–4:15 p.m. Keck Center of the National Academies Room 208 500 Fifth Street NW Washington, DC 20001 Agenda 8:45 a.m. Welcome and Introductions Amy Houtrow, M.D., Ph.D., M.P.H., Committee Chair 8:50 a.m. Vocational Rehabilitation and Special Education in Transition Laura Owens, Ph.D., CESP, President, TransCen Supported Employment and Transition for Youth with Autism Spectrum Disorders Carol M. Schall, Ph.D., Assistant Professor, Principal Investigator Rehabilitation Research and Training Center, Virginia Commonwealth University 9:30. Discussion 10:00 a.m. New York PROMISE Grant Program Arun Karpur, M.D., M.P.H., Extension Faculty; Yang Tan Institute on Employment and Disability, School of Industrial and Labor Relations, Cornell University ASPIRE (Multi-State Consortium PROMISE Grant Program) Carol Ruddell, M.A., Project Director, Achieving Success by Promoting Readiness in Employment and Education Consortium (ASPIRE) – Funded by the Promoting Readiness of Minors in Supplemental Security Income (PROMISE) grant program Marriott Foundation’s Bridges from School to Work Allen Brown, B.A., Managing Director of Operations, Bridges from School to Work, A program of the Marriott Foundation for People with Disabilities 10:45 a.m. Discussion 12:15 pm (Lunch Presenation) Juvenile Justice Systems and Children with Disabilities Peter Leone, Ph.D., Professor, College of Education, University of Maryland PREPUBLICATION COPY: UNCORRECTED PROOFS

APPENDIX A A-3 1:35 p.m. SAMHSA and Systems of Care Gary Blau, Ph.D., Chief of Child, Adolescent and Family Branch, Center for Mental Health Services, Substance Abuse and Mental Health Services Administration; Kirsten Painter, Ph.D., L.C.S.W., Public Health Analyst, Center for Mental Health Services, Substance Abuse and Mental Health Services Administration 2:05 p.m. Discussion 2:50 p.m. Youth and Family Perspectives Rylin Rodgers, Family Leader, Indiana University Darcy Gruttadaro, Director, National Alliance on Mental Illness Johanna Bergan, Executive Director, YouthMOVE 3:10 p.m. Discussion 4:15 p.m. Adjourn Public Session MEETING 3: PUBLIC SESSION Hosted by the Committee on Improving Health Outcomes for Children with Disabilities April 6, 2017 10:15 a.m.–3:35 p.m. National Academy of Sciences Room 120 2101 Constitution Ave. NW Washington, DC 20418 Agenda 10:15 a.m. Welcome and Introductions Amy Houtrow, M.D., Committee Chair 10:30 a.m. Childhood Disability and its Impacts on and of the Family Susan Parish, Ph.D., MSW, Dean, Bouve College of Health, Northeastern University 11:30 a.m. The Role of School Nurses in Improving Health Outcomes for Children with Disabilities Linda Wolfe, Ed..D.., RN, Director, School Support Services, Delaware Department of Education 1:30 p.m. National Technical Assistance Center on Transition (NTACT) Evidence based practices/rating system Catherine Fowler, Ph..D.., Project Coordinator, NTACT 2:30 p.m. Foster Care Youth with Disabilities Laurie Powers, Ph..D.., Emeritus Professor and Research Professor, Regional Research Institute, Portland State University 3:35 p.m. Adjourn Public Session PREPUBLICATION COPY: UNCORRECTED PROOFS

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Although the general public in the United States assumes children to be generally healthy and thriving, a substantial and growing number of children have at least one chronic health condition. Many of these conditions are associated with disabilities and interfere regularly with children’s usual activities, such as play or leisure activities, attending school, and engaging in family or community activities. In their most severe forms, such disorders are serious lifelong threats to children’s social, emotional well-being and quality of life, and anticipated adult outcomes such as for employment or independent living. However, pinpointing the prevalence of disability among children in the U.S. is difficult, as conceptual frameworks and definitions of disability vary among federal programs that provide services to this population and national surveys, the two primary sources for prevalence data.

Opportunities for Improving Programs and Services for Children with Disabilities provides a comprehensive analysis of health outcomes for school-aged children with disabilities. This report reviews and assesses programs, services, and supports available to these children and their families. It also describes overarching program, service, and treatment goals; examines outreach efforts and utilization rates; identifies what outcomes are measured and how they are reported; and describes what is known about the effectiveness of these programs and services.

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