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Review of the Disability Evaluation Study Design: Third Interim Report (1999)

Chapter: Appendix: Review of the Social Security Administration's Disability Decision Process Research: Study Mandate

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Suggested Citation:"Appendix: Review of the Social Security Administration's Disability Decision Process Research: Study Mandate." Institute of Medicine and National Research Council. 1999. Review of the Disability Evaluation Study Design: Third Interim Report. Washington, DC: The National Academies Press. doi: 10.17226/9706.
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Appendix
REVIEW OF THE SOCIAL SECURITY ADMINISTRATION'S DISABILITY DECISION PROCESS RESEARCH

Study Mandate

The study will review and provide advice on the scope of work, design, content of the survey, and the approach and scientific methods of completed and planned research as the Social Security Administration (SSA) develops the new disability decision process. The study will focus on the population 18-69 years of age. Although the committee is given latitude in setting its own agenda and designing its plan of work, the topics it explores will include:

  • Review of the research plan and timeline for developing a new decision process for disability;

  • Review of the preliminary design of the Disability Evaluation Study (DES) research efforts, the scope of work for the DES, and the design and content of the survey, as proposed by the survey contractor, as well as SSA's plans to integrate the decision method and DES research effort, identifying statistical design, methodological and content concerns, and other outstanding issues;

  • Examine the results of completed research including research into existing functional assessment instruments and subsequently identified research for SSA's redesign efforts, and provide advice for adopting or developing functional assessment instruments or protocols for the redesigned disability process and the DES in particular; and

  • Assess the results and findings of the research undertaken by SSA, comment on future research proposals, and offer advice on the analysis of the consequences of alternative disability determination processes. Some of the topic areas that might be considered include functional assessment of work-related limitations of physical and mental impairments; disability decision processes (including screening mechanisms); testing and validating decision processes for determining disability; and age, education, and work experience.

Suggested Citation:"Appendix: Review of the Social Security Administration's Disability Decision Process Research: Study Mandate." Institute of Medicine and National Research Council. 1999. Review of the Disability Evaluation Study Design: Third Interim Report. Washington, DC: The National Academies Press. doi: 10.17226/9706.
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The Social Security Administration (SSA) has been engaged in a major effort to redesign the process for determining disability for cash benefits and medical assistance under its Social Security Disability Insurance (SSDI), Title II of the Social Security Act and the Supplemental Security Income (SSI), Title XVI of the Social Security Act. Because of the complexity and far-reaching impact of its efforts, SSA concluded that the redesign effort requires extensive research, testing, and validation, as well as further development of some of its components before national implementation. The effect of the new determination process on the number and characteristics of future beneficiaries also needs further study. The agency asked the National Academies to provide ongoing independent and unbiased review of, and recommendations on, its current and proposed research as it relates to the development of a revised disability decision process including the approach, survey design, and content of the complex multiyear Disability Evaluation Study (DES).

The present report is the third in a series of short interim reports of the National Academies' Committee to Review the SSA's Disability Decision Process. This third interim report relates directly to one of the contract tasks—review of the design, approach, and content of the DES, as proposed by SSA's contractor for the survey, Westat, Inc. This report is limited to a brief review of the sample design (including that of the pilot study), instruments and procedures, and response rates goals developed by Westat and provided by SSA in June 1999 to the committee for its review and recommendations. It also comments on the proposed timeline for initiation of each phase of the survey.

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