Children’s Study 2014
Panel on the Design of the National Children’s Study and Implications for the Generalizability of Results
Greg J. Duncan, Nancy J. Kirkendall, and Constance F. Citro, Editors
Committee on National Statistics
Division of Behavioral and Social Sciences and Education
Board on Children, Youth, and Families
Institute of Medicine
NATIONAL RESEARCH COUNCIL AND
INSTITUTE OF MEDICINE
THE NATIONAL ACADEMIES PRESS
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NOTICE: The project that is the subject of this report was approved by the Governing Board of the National Research Council, whose members are drawn from the councils of the National Academy of Sciences, the National Academy of Engineering, and the Institute of Medicine. The members of the committee responsible for the report were chosen for their special competences and with regard for appropriate balance.
This study was supported by Contract/Grant No. HHSN263000025 between the National Academy of Sciences and the Department of Health and Human Services. Support of the work of the Committee on National Statistics is provided by a consortium of federal agencies through a grant from the National Science Foundation (No. SES-1024012). Any opinions, findings, conclusions, or recommendations expressed in this publication are those of the author(s) and do not necessarily reflect the views of the organizations or agencies that provided support for the project.
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International Standard Book Number-10: 0-309-30689-2
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Suggested citation: National Research Council and Institute of Medicine. (2014). The National Children’s Study 2014: An Assessment. Panel on the Design of the National Children’s Study and Implications for the Generalizability of Results, G.J. Duncan, N.J. Kirkendall, and C.F. Citro (Eds). Committee on National Statistics, Division of Behavioral and Social Sciences and Education, and Board on Children, Youth, and Families, Institute of Medicine. Washington, DC: The National Academies Press.
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PANEL ON THE DESIGN OF THE NATIONAL CHILDREN’S STUDY AND IMPLICATIONS FOR THE GENERALIZABILITY OF RESULTS
Greg J. Duncan (Chair), School of Education, University of California, Irvine
Dean B. Baker, Division of Occupational and Environmental Medicine, School of Medicine, University of California, Irvine
Paul P. Biemer, RTI International, Research Triangle Park, Raleigh, NC, and University of North Carolina at Chapel Hill
Barbara Lepidus Carlson, Mathematica Policy Research, Cambridge, MA
Ana V. Diez-Roux, School of Public Health, Drexel University
Virginia M. Lesser, Department of Statistics, Oregon State University
Marie C. McCormick, Department of Social and Behavioral Sciences, Harvard School of Public Health
Sara S. McLanahan, Department of Sociology and Woodrow Wilson School of Public and International Affairs, Princeton University
George R. Saade, University of Texas Medical Branch, Galveston
S. Lynne Stokes, Department of Statistical Sciences, Southern Methodist University
Leonardo Trasande, Departments of Population Health, Environmental Medicine, and Pediatrics, New York University Langone Medical Center
Nancy J. Kirkendall, Study Director
Agnes E. Gaskin, Administrative Assistant
COMMITTEE ON NATIONAL STATISTICS 2013-2014
Lawrence D. Brown (Chair), Department of Statistics, The Wharton School, University of Pennsylvania
John M. Abowd, School of Industrial and Labor Relations, Cornell University
Mary Ellen Bock, Department of Statistics, Purdue University
David Card, Department of Economics, University of California, Berkeley
Alicia Carriquiry, Department of Statistics, Iowa State University
Michael E. Chernew, Department of Health Care Policy, Harvard Medical School
Constantine Gatsonis, Center for Statistical Sciences, Brown University
James S. House, Survey Research Center, Institute for Social Research, University of Michigan
Michael Hout, Department of Sociology, New York University
Sallie Keller, Virginia Bioinformatics Institute at Virginia Tech, Arlington
Lisa Lynch, The Heller School for Social Policy and Management, Brandeis University
Colm O’Muircheartaigh, Harris School of Public Policy Studies, University of Chicago
Ruth Peterson, Criminal Justice Research Center, Ohio State University
Edward H. Shortliffe, Department of Biomedical Informatics, Columbia University, and Department of Biomedical Informatics, Mayo Clinic Campus of Arizona State University
Hal Stern, Donald Bren School of Information and Computer Sciences, University of California, Irvine
Constance F. Citro, Director
Jacqueline R. Sovde, Program Coordinator
BOARD ON CHILDREN, YOUTH, AND FAMILIES
Angela Diaz (Chair), Departments of Pediatrics and Preventive Medicine, Icahn School of Medicine at Mount Sinai, New York
Shari Barkin, Monroe Carell Jr. Children’s Hospital, Vanderbilt University
Thomas F. Boat, College of Medicine, University of Cincinnati
W. Thomas Boyce, Faculty of Medicine, University of British Columbia
David A. Brent, Western Psychiatric Institute and University of Pittsburgh School of Medicine
David V.B. Britt, Leadership Development Consultant, Amelia Island, FL
Debbie I. Chang, Nemours Health and Prevention Services, Newark, DE
Janet M. Currie, Woodrow Wilson School of Public and International Affairs, Princeton University
Patrick H. DeLeon, F. Edward Hebert School of Medicine and the Graduate School of Nursing, Uniformed Services University of the Health Sciences, Bethesda, MD
Gary W. Evans, Department of Design and Environmental Analysis and Department of Human Development, Cornell University
Elena Fuentes-Afflick, Department of Pediatrics, University of California, San Francisco, and San Francisco General Hospital
Eugene E. Garcia, Mary Lou Fulton Teachers’ College, Arizona State University
J. David Hawkins, School of Social Work, University of Washington
Jeffrey W. Hutchinson, Uniformed Services University of the Health Sciences, Bethesda, MD
Jacqueline Jones, Educational Research Consultant, Princeton, NJ
Ann S. Masten, Institute of Child Development, University of Minnesota
Velma McBride Murry, Peabody College, Vanderbilt University
Bruce S. McEwen, Harold and Margaret Milliken Hatch Laboratory of Neuroendocrinology, The Rockefeller University
Pamela Morris, The Steinhardt School of Culture, Education, and Human Development, New York University
Taha E. Taha, Bloomberg School of Public Health, Johns Hopkins University
Kimber Bogard, Board Director
The Panel on the Design of the National Children’s Study and Implications for the Generalizability of Results thanks the many people and organizations that contributed to the preparation of this report. Without their help, the panel could not have completed its work within the short time frame of the study. As chair, I first thank my fellow panel members for their commitment to the work under a demanding time schedule. They have consistently provided insightful and constructive input under tight deadlines as we developed this report.
The panel thanks Steven Hirschfeld and Jennifer Kwan of the Program Office of the National Children’s Study (NCS), at the U.S. Department of Health and Human Services, for their collegial interactions with the panel and their responses to our many questions. The panel also thanks its expert cost consultants, Randall Olsen of Ohio State University and Lisa Schwartz of Mathematica Policy Research, whose input on the cost model and related topics considered by the panel made a significant contribution to our work. The panel also thanks Nicole C. Deziel of Yale University for elaborating on her discussion of environmental measures at the National Research Council/Institute of Medicine Workshop on the Design of the National Children’s Study in January 2013.The panel also thanks Kate H. Choi, of Princeton University, for her fertility tabulations.
We very much appreciate the input from and thank the representatives of outside organizations who spoke with the panel at our open meetings: Virginia Delaney-Black, of the Children’s Hospital of Michigan, who spoke on behalf of a large number of former NCS Vanguard principal investigators; Jaqueline
Mosby, director of the Office of Children’s Health Research of the U.S. Environmental Protection Agency; James Perrin, president of the Academy of Pediatrics; and Cynthia Bearer of the Children’s Environmental Health Network.
The panel has been assisted by an able staff: Nancy Kirkendall, our study director, who facilitated panel activities and guided the panel on reaching conclusions and writing its report; Agnes Gaskin, who made all arrangements and managed logistics for the panel; and Connie Citro, director of the Committee on National Statistics, whose insights, detailed knowledge, and wise council were invaluable to the panel in its work.
This report has been reviewed in draft form by individuals chosen for their diverse perspectives and technical expertise, in accordance with procedures approved by the Report Review Committee of the National Research Council. The purpose of this independent review is to provide candid and critical comments that will assist the institution in making its published report as sound as possible and to ensure that the report meets institutional standards for objectivity, evidence, and responsiveness to the study charge. The review comments and draft manuscript remain confidential to protect the integrity of the deliberative process. We wish to thank the following individuals for their review of this report: Cynthia F. Bearer, Department of Pediatrics, University of Maryland Hospital for Children; Barbara D. Boyan, School of Engineering, Virginia Commonwealth University; Manning Feinleib, Bloomberg School of Public Health, Johns Hopkins University; Stephen E. Fienberg, Department of Statistics, Carnegie Mellon University; Lynn R. Goldman, Milken Institute School of Public Health, George Washington University; Heather Joshi, Institute of Education, Centre for Longitudinal Studies, London; Roderick J.A. Little, Department of Biostatistics, School of Public Health, University of Michigan; Colm A. O’Muircheartaigh, Harris School of Public Policy Studies, University of Chicago; Nigel Paneth, Departments of Epidemiology and Biostatistics and Pediatrics and Human Development, College of Human Medicine, Michigan State University; and Thomas S. Weisner, Department of Anthropology, Department of Psychiatry and Biobehavioral Sciences, and Center for Culture and Health, University of California, Los Angeles.
Although the reviewers listed above have provided many constructive comments and suggestions, they were not asked to endorse the conclusions or recommendations nor did they see the final draft of the report before its release. The review of this report was overseen by Janet Currie, Center for Health and Well-Being, Woodrow Wilson School of Public and International Affairs, Princeton University, and Johanna T. Dwyer, School of Medicine, Frances Stern Nutrition Center, Tufts Medical Center, and Office of Dietary Supplements, National Institutes of Health. Appointed by the National Research Council, they were responsible for ensuring that an independent examination of this report was carried out in accordance with institutional procedures and that all
review comments were carefully considered. Responsibility for the final content of this report rests entirely with the authoring committee and the institution.
Finally, we recognize the many federal agencies that support the Committee on National Statistics directly and through a grant from the National Science Foundation. Without their support and their commitment to improving the national statistical system, the panel’s work that is the basis of this report would not have been possible.
Greg J. Duncan, Chair
Panel on the Design of the National Children’s Study and Implications for the Generalizability of Results