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Suggested Citation:"Appendix F: Statement of Task." Institute of Medicine. 2015. Enabling Rapid and Sustainable Public Health Research During Disasters: Summary of a Joint Workshop by the Institute of Medicine and the U.S. Department of Health and Human Services. Washington, DC: The National Academies Press. doi: 10.17226/18967.
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F

Statement of Task

An ad hoc committee will organize a public workshop that will examine how to enable methodological and ethical public health and medical research on disaster preparedness, response, and recovery in parallel with and/or immediately following future emergencies. The committee will develop the workshop agenda, select and invite speakers and discussants, and moderate the discussions. Specifically, the workshop participants will

  • Discuss how to ensure adequate protections for human research participants.
    • Discuss principles that would strengthen informed consent during emergency use scenarios.
    • Explore mechanisms to ensure that investigators and research institutions are aware of resources available to minimize administrative burden.
    • Consider potential tools and guidance that could be developed to enable institutions to utilize central institutional review boards (IRBs).
  • Consider the opportunities and challenges associated with establishing a “research first responder” team.
    • Discuss the roles and responsibilities of the research team and how it can perform its functions without interfering with response efforts.
Suggested Citation:"Appendix F: Statement of Task." Institute of Medicine. 2015. Enabling Rapid and Sustainable Public Health Research During Disasters: Summary of a Joint Workshop by the Institute of Medicine and the U.S. Department of Health and Human Services. Washington, DC: The National Academies Press. doi: 10.17226/18967.
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    • Examine what funding mechanisms and infrastructure requirements are necessary to facilitate “research first responder” teams.
    • Consider what triggers could be used to activate the research infrastructure and teams.
  • Consider opportunities and structures necessary to enable citizen scientists.

An individually authored summary of the presentations and discussions at the workshop will be prepared by a designated rapporteur in accordance with institutional guidelines.

Suggested Citation:"Appendix F: Statement of Task." Institute of Medicine. 2015. Enabling Rapid and Sustainable Public Health Research During Disasters: Summary of a Joint Workshop by the Institute of Medicine and the U.S. Department of Health and Human Services. Washington, DC: The National Academies Press. doi: 10.17226/18967.
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Page 173
Suggested Citation:"Appendix F: Statement of Task." Institute of Medicine. 2015. Enabling Rapid and Sustainable Public Health Research During Disasters: Summary of a Joint Workshop by the Institute of Medicine and the U.S. Department of Health and Human Services. Washington, DC: The National Academies Press. doi: 10.17226/18967.
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Page 174
Enabling Rapid and Sustainable Public Health Research During Disasters: Summary of a Joint Workshop by the Institute of Medicine and the U.S. Department of Health and Human Services Get This Book
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Over the past decade, preparedness and response capacities of government agencies, hospitals and clinics, public health agencies, and academic researchers in the United States and abroad have been challenged by a succession of public health emergencies, ranging from radiological threats to pandemics to earthquakes. Through After Action Reports, each of these emergencies has yielded important information and lessons learned that can inform future disaster response and recovery efforts. However, important information that needs to be collected during and immediately following these emergencies is often missed because of barriers and obstacles to gathering such data, such as varying institutional review board restrictions in different states, no sustainable funding network for this type of work, uncertainty on who should be involved in research response, and a lack of knowledge around how best to integrate research into response and recovery frameworks.

Taking action to enable medical and public health research during disasters was the focus of a workshop held on June 12 and 13, 2014, coordinated and supported jointly by the Institute of Medicine Forum on Medical and Public Health Preparedness for Catastrophic Events, National Institute of Environmental Health Sciences, the National Library of Medicine, the U.S. Department of Health and Human Services' Office of the Assistant Secretary for Preparedness and Response, and the Centers for Disease Control and Prevention. Invited speakers and participants from federal, state, and local government, academia, and community and worker organizations came together to discuss how to integrate research into existing response structures; identify critical research needs and priorities; identify obstacles and barriers to research; discuss structures and strategies needed for deployment of a research study; share ideas, innovations, and technologies to support research; and explore data collection tools and data-sharing mechanisms for both rapid and longitudinal research. Enabling Rapid and Sustainable Public Health Research During Disasters summarizes the presentations and discussion of the workshop.

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