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Childhood Cancer and Functional Impacts Across the Care Continuum (2021)

Chapter: Appendix A: Public Session Agendas

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Suggested Citation:"Appendix A: Public Session Agendas." National Academies of Sciences, Engineering, and Medicine. 2021. Childhood Cancer and Functional Impacts Across the Care Continuum. Washington, DC: The National Academies Press. doi: 10.17226/25944.
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Appendix A

Public Session Agendas

MEETING 1: PUBLIC SESSION

Hosted by the Committee on Childhood Cancers and Disability
November 4, 2019

Keck Center of the National Academies
Room 206
500 Fifth Street, NW
Washington, DC 20001

AGENDA

10:45 a.m. Welcome and Introductions
Paul Volberding, M.D., Committee Chair
Gina Clemons, Associate Commissioner, Office of Disability Policy, U.S. Social Security Administration (SSA)
11:00 a.m. SSA Presentations Relevant to the Committee’s Task
  • Background and basis for the task order
    Alayna Ness, Supervisor/Contracting Officer’s
    Representative, Office of Medical Policy, SSA
  • Disability determination process for children and child cancer listings
    Robin Doyle, Technical Expert, Office of Medical Policy, SSA
Suggested Citation:"Appendix A: Public Session Agendas." National Academies of Sciences, Engineering, and Medicine. 2021. Childhood Cancer and Functional Impacts Across the Care Continuum. Washington, DC: The National Academies Press. doi: 10.17226/25944.
×
Cassandra Assefa, Policy Analyst, Office of Medical Policy, SSA
11:30 a.m. Discussion of SSA Processes and the Statement of Task
Committee Members and SSA Staff
12:30 p.m. Break for Lunch
1:30 p.m. Pediatric Cancers and Disability
Leslie L. Robison, Ph.D., Chair, Department of Epidemiology and Cancer Control, St. Jude Children’s Research Hospital
2:00 p.m. Questions and Discussion
Committee Members and SSA Staff
2:55 p.m. Summary and Closing Remarks
Paul Volberding, M.D., Committee Chair
3:00 p.m. Adjourn

MEETING 2: PUBLIC SESSION

Hosted by the Committee on Childhood Cancers and Disability
January 21, 2020

Keck Center of the National Academies
Room 101
500 Fifth Street, NW
Washington, DC 20001

AGENDA

9:30 a.m. Welcome and Introductions
Paul Volberding, M.D., Committee Chair
9:40 a.m. Psychosocial Functioning
Christopher J. Recklitis, Ph.D., M.P.H., Perini Family Survivors’ Center, Dana-Farber Cancer Institute
10:40 a.m. Break
Suggested Citation:"Appendix A: Public Session Agendas." National Academies of Sciences, Engineering, and Medicine. 2021. Childhood Cancer and Functional Impacts Across the Care Continuum. Washington, DC: The National Academies Press. doi: 10.17226/25944.
×
10:55 a.m. Neurocognitive Functioning
Kristina K. Hardy, Ph.D., Division of Neuropsychology, Children’s National Health System
11:55 a.m. Break for Lunch
1:00 p.m. Physical Functioning
Kirsten K. Ness, PT, Ph.D., FAPTA, Department of Epidemiology and Cancer Control, St. Jude Children’s Research Hospital
2:00 p.m. Functioning in Children During and Following Cancer Treatment
Lisl Schweers, LCSW, OSW-C, Cancer and Blood Disease Institute, Children’s Hospital Los Angeles
3:00 p.m. Break
3:10 p.m. Panel Discussion: Functioning in Pediatric Cancer Patients and Survivors
Moderator: Barbara L. Jones, Ph.D., M.S.W., Committee Member
  • Victoria Sardi-Brown, Ph.D., LPC, Mattie Miracle Cancer Foundation
  • Megan P. Elam, Ed.D., Center for School Services and Educational Research, Cancer and Blood Diseases Institute, Cincinnati Children’s Hospital Medical Center
  • Stacia Wagner, M.S.W., Children’s Brain Tumor Foundation
  • Gregory J. Aune, M.D., Ph.D., Greehey Children’s Cancer Research Institute, The University of Texas Health Science Center San Antonio
4:25 p.m. Closing Remarks
Paul Volberding, M.D., Committee Chair
4:30 p.m. Adjourn

Suggested Citation:"Appendix A: Public Session Agendas." National Academies of Sciences, Engineering, and Medicine. 2021. Childhood Cancer and Functional Impacts Across the Care Continuum. Washington, DC: The National Academies Press. doi: 10.17226/25944.
×

MEETING 3: PUBLIC SESSION

Hosted by the Committee on Childhood Cancers and Disability
February 24, 2020

National Academy of Sciences Building
Board Room
2101 Constitution Avenue, NW
Washington, DC 20418

AGENDA

9:30 a.m. Welcome and Introductions
Paul Volberding, M.D., Committee Chair
9:35 a.m. Pain and Childhood Cancers
Nicole M. Alberts, Ph.D., St. Jude Children’s Research Hospital
10:35 a.m. Break
10:50 a.m. Pain Treatment and Effects of Pain Treatment
Elliot Krane, M.D., Stanford Children’s Health
11:50 a.m. Closing Remarks
Paul Volberding, M.D., Committee Chair
12:00 p.m. Adjourn Public Session
Suggested Citation:"Appendix A: Public Session Agendas." National Academies of Sciences, Engineering, and Medicine. 2021. Childhood Cancer and Functional Impacts Across the Care Continuum. Washington, DC: The National Academies Press. doi: 10.17226/25944.
×
Page 435
Suggested Citation:"Appendix A: Public Session Agendas." National Academies of Sciences, Engineering, and Medicine. 2021. Childhood Cancer and Functional Impacts Across the Care Continuum. Washington, DC: The National Academies Press. doi: 10.17226/25944.
×
Page 436
Suggested Citation:"Appendix A: Public Session Agendas." National Academies of Sciences, Engineering, and Medicine. 2021. Childhood Cancer and Functional Impacts Across the Care Continuum. Washington, DC: The National Academies Press. doi: 10.17226/25944.
×
Page 437
Suggested Citation:"Appendix A: Public Session Agendas." National Academies of Sciences, Engineering, and Medicine. 2021. Childhood Cancer and Functional Impacts Across the Care Continuum. Washington, DC: The National Academies Press. doi: 10.17226/25944.
×
Page 438
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Since the late 1960s, the survival rate in children and adolescents diagnosed with cancer has steadily improved, with a corresponding decline in the cancer-specific death rate. Although the improvements in survival are encouraging, they have come at the cost of acute, chronic, and late adverse effects precipitated by the toxicities associated with the individual or combined use of different types of treatment (e.g., surgery, radiation, chemotherapy). In some cases, the impairments resulting from cancer and its treatment are severe enough to qualify a child for U.S. Social Security Administration disability benefits.

At the request of Social Security Administration, Childhood Cancer and Functional Impacts Across the Care Continuum provides current information and findings and conclusions regarding the diagnosis, treatment, and prognosis of selected childhood cancers, including different types of malignant solid tumors, and the effect of those cancers on children’s health and functional capacity, including the relative levels of functional limitation typically associated with the cancers and their treatment. This report also provides a summary of selected treatments currently being studied in clinical trials and identifies any limitations on the availability of these treatments, such as whether treatments are available only in certain geographic areas.

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