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311 A p p e n d i x M The Naturalistic Driving Study is a large research effort directed at improving Highway Safety in the United States where more than 30,000 people are killed and 2 million are injured every year in highway-related accidents. The study will help researchers gain a deeper understanding of the interac- tion between the driver, vehicle and roadway and lead to safer roadways, vehicles, and driver training programs. The SHRP 2 Naturalistic Driving Study will look at how people normally drive by installing cameras and sensors in peopleâs own vehi- cles. The study is being conducted at six locations across the United States with up to 3,300 participants. Participation will range from four months to two years. About 370 participants will be minors. If you decide to participate in the study, we will install sev- eral pieces of data collection equipment in a vehicle owned or co-owned by you, a parent, or someone else who has given permission for the vehicle to be in the study. The equipment will collect data continuously, from the time the vehicle is turned on until it is turned off. There will be video of your face, arms, and legs that will tell us what you do while you drive. There will also be video of the forward roadway and the roadway behind the vehicle. GPS will provide the location of the vehicle. Sensors will measure speed, braking, turn signal use and other vehicle and driver behaviors. The risk while driving will be the same as the risk of driving when not in the study. Although there is only a low probabil- ity of occurrence, the biggest risk believed to be associated with participation in this study is the possibility that some- one could obtain your data and use it in a way that harms you legally, financially, or emotionally. To prevent this, we have taken several steps to ensure your confidentiality and the confidentiality of your passengers and other people who drive your car. ⢠A Certificate of Confidentiality has been obtained from the National Institutes of Health. With this Certificate, the researchers and study sponsors cannot be forced to disclose information that may identify you, even by a court sub- poena, in any federal, state, or local civil, criminal, admin- istrative, legislative, or other proceedings. ⢠The data will be encrypted (made unreadable) from the time it is collected until it is transferred to a high secu- rity data center. Once it is at the data center, care will be taken that the data are only used for legitimate research purposes. ⢠Data that can identify you, such as video of your face and the GPS locations of your home, work, or school, will never be disclosed to the public. Such data will only be used by legitimate researchers in a secure data cen- ter, with the approval of an institutional review board charged with protection of research subjects, and under a data sharing agreement that protects the confidentiality of your data. ⢠The data of other drivers who have not signed a consent form will be deleted after data processing identifies them as unconsented drivers. No identifying information will be collected on passengers. If you decide to participate, you will be asked to do the following things: ⢠Bring a parent with you when you enroll (you or the par- ent must own or co-own the vehicle used in the study, or you must provide written permission from the vehicle owner). ⢠Provide us with proof of a valid U.S. driverâs license (you), vehicle insurance (you or your parent), and vehicle owner- ship (you, your parent, or someone else who has given per- mission for the vehicle to be in the study). ⢠Undergo a consent process which includes reviewing and signing an informed assent form. Your parent must review and sign an informed consent form allowing you Minor (Teen) Participant Information Sheet
312 ⢠If you are in a crash, we may ask you later to participate in an interview about the crash and allow us to look at the police accident report. There is compensation for participation in the study equivalent to $42 per month (with a minimum enrollment of 4 months). to participate (and allowing us to install the data collec- tion equipment in their vehicle if they own the vehicle). ⢠Undergo tests of vision, memory, decision making, atten- tion, body movement, and strength. ⢠Complete questionnaires about your health and your driving behavior, history, and knowledge.
