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Improving Health Research on Small Populations: Proceedings of a Workshop (2018)

Chapter: Appendix A: Agenda and List of Participants

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Suggested Citation:"Appendix A: Agenda and List of Participants." National Academies of Sciences, Engineering, and Medicine. 2018. Improving Health Research on Small Populations: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25112.
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Appendix A

Agenda and List of Participants

AGENDA

DAY 1: Thursday, January 18, 8:30 AM - 5:00 PM (NAS Lecture Room)
8:00-8:30 AM Registration (East Court)
8:30 WELCOME AND INTRODUCTIONS
MODERATOR: Graham Colditz, Committee Chair, Washington University in St. Louis

8:35 Welcome to the National Academy of Sciences Brian Harris-Kojetin, Director, Committee on National Statistics, National Academies of Sciences, Engineering, and Medicine

8:45 Motivation and Objectives for the Workshop Robert T. Croyle, Director, Division of Cancer Control and Population Sciences, National Cancer Institute

9:00 SESSION 1: What Do We Mean by Small Populations?
How to Decide When a Small Population Is Important or Meaningfully Different Enough to Study?
MODERATOR: Graham Colditz, Committee Chair, Washington University in St. Louis
Suggested Citation:"Appendix A: Agenda and List of Participants." National Academies of Sciences, Engineering, and Medicine. 2018. Improving Health Research on Small Populations: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25112.
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9:05 Howard Koh, Harvard T.H. Chan School of Public Health, The Importance of Health Research on Small Populations

9:35 Scarlett Lin Gomez, University of California, San Francisco, Data Issues in Studying Small Populations: Challenges, Opportunities, and a Case Study

9:50 Lisa Signorello, Division of Cancer Prevention, National Cancer Institute, Fielding Studies in Underrepresented Populations: Challenges and Considerations

10:05 Floor Discussion

10:20 BREAK
10:40 SESSION 2: Challenges in Using Available Data for Small Population Health Research
MODERATOR: Lance Waller, Committee Member, Emory University

10:45 Kelly Devers, NORC, The Feasibility of Using Electronic Health Records and Electronic Health Data for Research on Small Populations

11:05 Chris Fowler, Pennsylvania State University, Using Geospatial Methods with Demographic Data to Identify Populations

11:25 Ellen Cromley, Consultant, Using Geospatial Methods with Other Health and Environmental Data to Identify Populations

11:45 Floor Discussion

12:00 PM LUNCH
1:00 SESSION 3: Techniques Used in Survey Research to Identify and Find Small Populations for Health Research
MODERATOR: Graham Kalton, Committee Member, Westat
Suggested Citation:"Appendix A: Agenda and List of Participants." National Academies of Sciences, Engineering, and Medicine. 2018. Improving Health Research on Small Populations: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25112.
×

1:05 Marc Elliott, RAND, Probability Sampling Methods for Small Populations

1:25 Sunghee Lee, University of Michigan, Two Applications of Respondent Driven Sampling: Ethnic Minorities and Illicit Substance Users

1:45 Patrick Sullivan, Emory University, Venue-Based and On-line Sampling

2:05 Krista Gile, University of Massachusetts Amherst, Invited Discussant

2:25 Floor Discussion

2:45 BREAK
3:00 SESSION 4: New and Emerging Designs for Intervention Studies
MODERATOR: James Allen, Committee Member, University of Minnesota Medical School

3:05 Amy M. Kilbourne, University of Michigan, Designs for Dissemination and Implementation Research for Small Populations

3:35 Christine Lu, Harvard Medical School, Quasi-experimental Designs with Application to Small Populations

3:55 Diane Korngiebel, University of Washington, Addressing the Challenges of Research with Small Populations

4:15 Patrick H. Tolan, University of Virginia, Invited Discussant

4:35 Floor Discussion

5:00 PM ADJOURN
DAY 2: Friday, January 19, 8:30 AM - 2:00 PM (NAS Lecture Room)
8:30 AM Welcome to Day 2
MODERATOR: Graham Colditz, Committee Chair, Washington University in St. Louis
Suggested Citation:"Appendix A: Agenda and List of Participants." National Academies of Sciences, Engineering, and Medicine. 2018. Improving Health Research on Small Populations: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25112.
×

8:40 SESSION 5: Recruitment, Retention, and Collection of Data with a Focus on Small or Hard to Reach Populations
MODERATOR: Jan Probst, Committee Member, University of South Carolina

8:45 Vetta Sanders Thompson, Washington University in St. Louis, Issues and Challenges Associated with Recruitment and Retention for Health Research

9:05 F. Douglas Scutchfield, University of Kentucky, Improving Health Research in Rural Areas

9:25 Kathi Mooney, University of Utah, Using Technology for Recruitment, Retention, Data Collection, and Intervention Delivery

9:45 Tracy L. Onega, Dartmouth College, Invited Discussant

10:05 Floor Discussion

10:20 BREAK
10:40 SESSION 6: Analysis Techniques for Small Population Research
MODERATOR: Lance Waller, Committee Member, Emory University

10:45 Rick H. Hoyle, Duke University, Design and Analysis Considerations in Research with Small Samples

11:05 Thomas A. Louis, Johns Hopkins Bloomberg School of Public Health, Bayesian Methods for Small Population Analysis

11:25 Katherine R. McLaughlin, Oregon State University, Estimating the Size of Hidden Populations

11:45 Floor Discussion

12:00 PM LUNCH
Suggested Citation:"Appendix A: Agenda and List of Participants." National Academies of Sciences, Engineering, and Medicine. 2018. Improving Health Research on Small Populations: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25112.
×
1:00 SESSION 7: Wrap-up and Concluding Remarks
MODERATOR: Gordon Willis, National Cancer Institute

1:00 Steering Committee, Panel Discussion—Next Steps in Improving Health Research for Small Populations

1:30 Floor Discussion

2:00 PM ADJOURN
Suggested Citation:"Appendix A: Agenda and List of Participants." National Academies of Sciences, Engineering, and Medicine. 2018. Improving Health Research on Small Populations: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25112.
×

PARTICIPANT LIST

Steering Committee Members

Graham Colditz (Chair), Niess-Gain Professor of Surgery, Washington University School of Medicine

James Allen, Professor, Department of Biobehavioral Health and Population Sciences, University of Minnesota Medical School

Graham Kalton, Chairman and Senior Vice President, Westat

Janice Probst, Professor, Department of Health Services Policy and Management, University of South Carolina, Arnold School of Public Health

Lance Waller, Rollins Professor and Chair, Department of Biostatistics and Bioinformatics, Emory University, Rollins School of Public Health

Sponsors

David Berrigan, Program Director, Behavioral Research Program, Division of Cancer Control and Population Sciences, National Cancer Institute (NCI), National Institutes of Health (NIH)

Robert Croyle, Director, Division of Cancer Control and Population Sciences, NCI, NIH

Rina Das, Program Director, Division of Extramural Scientific Programs, National Institute on Minority Health and Health Disparities (NIMHD), NIH

Richard Moser, Training Director, Division of Cancer Control and Population Sciences, NCI, NIH

Alonzo Plough, Vice President, Research Evaluation Learning and Chief Science Officer, Robert Wood Johnson Foundation

Shobha Srinivasan, Health Disparities Research Coordinator, NCI, NIH

Gordon Willis, Program Director, Behavioral Research Program, Division of Cancer Control and Population Sciences, NCI, NIH

Presenters

Ellen Cromley, Consultant, Washington State

Kelly Devers, Senior Fellow, Health Care, NORC at the University of Chicago

Marc Elliott, Senior Principal Researcher, RAND Corporation

Chris Fowler, Assistant Professor of Geography and Demography, Pennsylvania State University

Suggested Citation:"Appendix A: Agenda and List of Participants." National Academies of Sciences, Engineering, and Medicine. 2018. Improving Health Research on Small Populations: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25112.
×

Krista Gile, Associate Professor, Department of Mathematics and Statistics, University of Massachusetts

Scarlett Lin Gomez, Adjunct Professor, University of California, San Francisco School of Medicine

Rick Hoyle, Professor, Department of Psychology and Neuroscience, Duke University

Amy Kilbourne, Professor, Institute for Healthcare Policy and Innovation, University of Michigan

Howard Koh, Harvey V. Fineberg Professor of the Practice of Public Health Leadership, Harvard T.H. Chan School of Public Health

Diane Korngiebel, Assistant Professor, Department of Biomedical Informatics and Medical Education, University of Washington

Sunghee Lee, Associate Research Scientist, Institute for Social Research, University of Michigan

Tom Louis, Professor, Department of Biostatistics, Johns Hopkins Bloomberg School of Public Health

Christine Lu, Associate Professor of Population Medicine, Harvard Medical School

Katherine McLaughlin, Assistant Professor of Statistics, Oregon State University

Kathi Mooney, Distinguished Professor, University of Utah College of Nursing

Tracy Onega, Associate Professor, Department of Biomedical Data Science; Epidemiology; and The Dartmouth Institute for Health Policy & Clinical Practice, Dartmouth College

F. Douglas Scutchfield, University of Kentucky College of Public Health

Lisa Signorello, Senior Biomedical Scientist, NCI, NIH

Patrick Sullivan, Rollins School of Public Health, Emory University

Vetta Sanders Thompson, Professor, Brown School, Washington University in St. Louis

Patrick H. Tolan, Director Emeritus, Youth-Nex Center, The UVA Center to Promote Effective Youth Development

Guests

Alaba Oluwatoyin Adedoyin, Industrial Program Officer, Obafemi Awolowo University, Nigeria

Brenda Adjei, Program Director, NCI (joining via Webinar)

Jennifer Alvidrez, Program Official, Division of Scientific Programs, NIMHD, NIH (joining via Webinar)

Sean Arayasirikul, Assistant Professor, Division of Developmental Medicine, Department of Pediatrics, School of Medicine, University of California, San Francisco (joining via Webinar)

Suggested Citation:"Appendix A: Agenda and List of Participants." National Academies of Sciences, Engineering, and Medicine. 2018. Improving Health Research on Small Populations: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25112.
×

Jessica Athens, Assistant Professor, Department of Population Health, New York University (NYU) School of Medicine

Kellan Baker, Department of Health Policy and Management, Johns Hopkins Bloomberg School of Public Health

Christopher Barnhart, AAAS Science and Technology Policy Fellow, Health Scientist, NIH Office of the Director (joining via Webinar)

Annie Beach, Research Fellow, Division of Cancer Control and Population Sciences, NCI, NIH

Inna Belfer, Health Scientist Administrator/Project Officer, Office of Research on Women’s Health (ORWH), HHS/NIH/OD/DPCPSI (joining via Webinar)

Kara Bensley, Postdoctoral Research Fellow, University of California, Berkeley, Associate Scientist, Alcohol Research Group (joining via Webinar)

Lew Berman, Vice President, Social and Analytic Solutions, Maryland

Sarah Bruce Bernal, Implementation Science Team, Division of Cancer Control and Population Sciences, NCI, NIH

Obasanjo Bolarinwa, Postgraduate, Obafemi Awolowo University, Nigeria (joining via Webinar)

Cheryl Boyce, Chief, Implementation Science Branch, Center for Translation Research and Implementation Science, National Heart, Lung, and Blood Institute (NHLBI), NIH, Department of Health and Human Services (HHS) (joining via Webinar)

Abee Boyles, Population Health Branch, Division of Extramural Research & Training, National Institute of Environmental Health Sciences (NIEHS), NIH (joining via Webinar)

Kathryn Brignole, Cancer Research Training Award Fellow, Genomic Epidemiology Branch, Epidemiology and Genomics Research Program, Division of Cancer Control and Population Sciences, NCI, NIH

Victoria Cargill, Medical Officer, Associate Director, Interdisciplinary Research, Office of Research on Women’s Health, NIH (joining via Webinar)

Dorothy Castille, Health Scientist Administrator, NIMHD, NIH

Liza Catucci, Administrative Officer, Health Services Research and Development, Department of Veterans Affairs

Christine Chang, Scientific Program Coordinator, National Human Genome Research Institute (NHGRI), NIH (joining via Webinar)

Anita Cheung, Johns Hopkins University (joining via Webinar)

Dietta Chihade, Mirzayan Fellow, National Academies of Sciences, Engineering, and Medicine

Suggested Citation:"Appendix A: Agenda and List of Participants." National Academies of Sciences, Engineering, and Medicine. 2018. Improving Health Research on Small Populations: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25112.
×

Juanita Chinn, Program Director, Population Dynamics Branch, Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD), NIH

Sarah Conderino, Surveillance Data Scientist, Department of Population Health, NYU School of Medicine

Allison Cook, Program Specialist, NCI, NIH

Danielle Daee, Program Director, Division of Cancer Control and Population Sciences, NCI, NIH (joining via Webinar)

Jyoti Dayal, Program Officer, NHGRI, NIH (joining via Webinar)

Roberto Delgado, National Institute of Mental Health, NIH

Christina N. Dragon, Statistician, Office of Minority Health, Centers for Medicare & Medicaid Services (CMS)

Kevin English, Director, Albuquerque Area Southwest Tribal Epidemiology Center (AASTEC), Albuquerque Area Indian Health Board, Inc. (AAIHB) (joining via Webinar)

Sarah Fagan, Fellow, Division of Cancer Control and Population Sciences, NCI, NIH

Angela Falisi, Program Specialist, Division of Cancer Control and Population Sciences, NCI, NIH (joining via Webinar)

Margaret Farrell, Public Health Adviser, Division of Cancer Control and Population Sciences, NCI, NIH

Jessica Fish, Postdoctoral Fellow, Population Research Center, University of Texas at Austin (joining via Webinar)

Eleanor Fleming, Dental Public Health Resident, Boston University

Gonçalo Forjaz de Lacerda, Guest Researcher, Data Analytics Branch, NCI, NIH

Lisa Gallicchio, Program Director, Division of Cancer Control and Population Sciences, NCI, NIH

Silvia Garvey, Scientific Program Specialist, Division of Genomic Medicine, NHGRI, NIH (joining via Webinar)

Elizabeth Gillanders, Branch Chief, Division of Cancer Control and Population Sciences, NCI, NIH (joining via Webinar)

Kimberly Ann Gray, Program Director, Children’s Environmental Health, Population Health Branch, Division of Extramural Research and Training, NIEHS, NIH

Michaela Gross, Research Assistant, University of South Florida (joining via Webinar)

Paul Guerino, Statistician and Poverty Data Lead, Office of Minority Health, CMS (joining via Webinar)

Elina Guralnik, Health Consultant, George Mason University

Craig Hales, Division of Health and Nutrition Examination Surveys, National Center for Health Statistics, Centers for Disease Control and Prevention (CDC)

Suggested Citation:"Appendix A: Agenda and List of Participants." National Academies of Sciences, Engineering, and Medicine. 2018. Improving Health Research on Small Populations: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25112.
×

Emily Haozous, Associate Professor, Regent’s Professor, University of New Mexico College of Nursing (joining via Webinar)

Jody L. Herman, Scholar of Public Policy, Williams Institute, UCLA School of Law (joining via Webinar)

Kelly Hirko, Assistant Professor, Department of Epidemiology & Biostatistics, College of Human Medicine, Michigan State University (joining via Webinar)

Kristen Hudgins, Social Science Analyst, Office of Performance and Evaluation, Department of Health and Human Services

Genevieve Hugenbruch, Graduate Research Assistant, Maryland Department of Health (joining via Webinar)

Chandra Jackson, Earl Stadtman Investigator, Epidemiology Branch, Social and Environmental Determinants of Health Equity, NIEHS, NIH (joining via Webinar)

Aimee James, Associate Professor and T32 Training Director, Division of Public Health Sciences–Department of Surgery, Washington University School of Medicine

Anuradha Jetty, Research Associate, Robert Graham Center for Policy Studies in Family Medicine and Primary Care, American Academy of Family Physicians

Bonnie Joubert, Program Director, Population Health Branch, Division of Extramural Research and Training, NIEHS, NIH (joining via Webinar)

Edmund Keane, Health Science Policy Analyst, Tribal Health Research Office, NIH

Amy Kennedy, Center for Research Strategy, NCI, NIH

Min Kim, Senior Program Specialist, Office of Minority Health and Health Disparities, Maryland Department of Health (joining via Webinar)

Imke Kirste, Study Manager, NIEHS Clinical Research Unit, NIH (joining via Webinar)

Lisa Klesges, Senior Adviser, Implementation Science and Public Health (Consultant), Division of Cancer Control and Population Sciences, NCI, NIH

Sarah Kobrin, Chief (acting), Health Systems and Interventions Research Branch, NCI, NIH

Julie Kranick, Center for the Study of Asian American Health, NYU School of Medicine (joining via Webinar)

Poorna Kushalnagar, Director, Deaf Health Communication and Quality of Life Research Lab, Gallaudet University (joining via Webinar)

Bryan Kutner, Postdoctoral Research Fellow, HIV Center for Clinical and Behavioral Studies at the NY State Psychiatric Institute and Columbia University (joining via Webinar)

Suggested Citation:"Appendix A: Agenda and List of Participants." National Academies of Sciences, Engineering, and Medicine. 2018. Improving Health Research on Small Populations: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25112.
×

Simona Kwon, Assistant Professor, NYU School of Medicine, (joining via Webinar)

Karen Lee, Medical Officer, Director, Behavioral Pediatrics and Health Promotion Program, Child Development and Behavior Branch, NICHD, NIH (joining via Webinar)

Eugene Lengerich, Professor of Public Health Sciences, Pennsylvania State University

Alicia LePard, Acute Care Nurse Practitioner, High Desert Healthcare, LLC, Wyoming (joining via Webinar)

Benmei Liu, Mathematical Statistician and Program Director, Division of Cancer Control and Population Sciences, NCI, NIH

Ryan Mahon, Program Analyst (Contractor), Division of Program Coordination, Planning, and Strategic Initiatives, Office of the Director, NIH (joining via Webinar)

Andrea Horvath Marques, Chief, Office for Research on Disparities and Global Mental Health, National Institute of Mental Health, NIH

Heather Menne, Social Science Analyst, Office of Performance and Evaluation, Center for Policy and Evaluation, Administration for Community Living, Department of Health and Human Services (joining via Webinar)

Nancy Miller, Senior Adviser to the Associate Director, Division of Cancer Control and Population Sciences, NCI, NIH (joining via Webinar)

Shabab Ahmed Mirza, Research Assistant, LGBT Progress, Center for American Progress (joining via Webinar)

Florence Momplaisir, Assistant Professor, Drexel University College of Medicine (joining via Webinar)

Jennifer Moss, Cancer Research Fellow, Division of Cancer Control and Population Sciences, NCI, NIH (joining via Webinar)

Arnab Mukherjea, Assistant Professor of Health Sciences, California State University, East Bay

Amy Napoles, NIMHD

Hervette Nkwihoreze, Research Assistant, Drexel University College of Medicine (joining via Webinar)

Angele Nyinawingabo, Research Assistant, Drexel University College of Medicine (joining via Webinar)

Chris Obermeyer, Fulbright Public Policy Fellow, Ministry of Health of Ukraine (joining via Webinar)

Ayokunle Omoniyi, Program Officer, Huklyn Global Fund, Nigeria

Karen Parker, Director, Sexual and Gender Minority Research Office, Division of Program Coordination, Planning, and Strategic Initiatives, Office of the Director, NIH (joining via Webinar)

Suggested Citation:"Appendix A: Agenda and List of Participants." National Academies of Sciences, Engineering, and Medicine. 2018. Improving Health Research on Small Populations: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25112.
×

Dolly Penn, Medical Officer, Healthcare Assessment Research Branch, Healthcare Delivery Research Program, Division of Cancer Control and Population Sciences, NCI, NIH (joining via Webinar)

Antoinette Percy-Laurry, Health Scientist, Implementation Science, Division of Cancer Control and Population Sciences, NCI, NIH (joining via Webinar)

Mackenzi Pergolotti, Assistant Professor, Department of Occupational Therapy, Colorado State University (joining via Webinar)

Courtney Pinard, Senior Research Scientist, Center for Nutrition, Nebraska (joining via Webinar)

Stephanie Jilcott Pitts, Associate Professor, Department of Public Health, East Carolina University

Mandi Pratt-Chapman, Associate Center Director, Patient-Centered Initiatives and Health Equity, George Washington Cancer Center

Mona Puggal, Division of Cardiovascular Sciences, NHLBI, NIH (joining via Webinar)

Gita Rampersad, Strategic Engagement Consultant, Healthcare Ready, Washington, DC (joining via Webinar)

Jennifer Rankin, Senior Manager, Research and Product Services, American Academy of Family Physicians, Washington, DC

Sarah E. Raskin, Assistant Professor, iCubed Initiative, Oral Health Core, L. Douglas Wilder School of Government and Public Affairs, Virginia Commonwealth University

Nicole Redmond, Medical Officer, Division of Cardiovascular Sciences, NIH

Mary Roary, Program Director, Division of Extramural Science Programs, National Institute of Nursing Research, NIH (joining via Webinar)

Carol Robbins, Public Health Analyst, Office of Planning, Analysis and Evaluation, Health Resources and Services Administration

Megan Roberts, Division of Cancer Control and Population Sciences, NCI, NIH

Eduardo Romano, Senior Research Scientist, Pacific Institute for Research and Evaluation, (joining via Webinar)

Adelaida Rosario, Health Specialist, NIMHD, NIH

Sonia Rosenfield, Center for Research Strategy, National Institute on Alcohol Abuse and Alcoholism, NIH

Melissa Rotunno, Program Director, Division of Cancer Control and Population Sciences, NCI, NIH (joining via Webinar)

Stefanie Russell, Associate Professor, Department of Epidemiology & Health Promotion, NYU College of Dentistry

Zeina Saliba, Assistant Professor, George Washington University (joining via Webinar)

Suggested Citation:"Appendix A: Agenda and List of Participants." National Academies of Sciences, Engineering, and Medicine. 2018. Improving Health Research on Small Populations: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25112.
×

Ramzi Salloum, Assistant Professor, Health Outcomes and Policy, University of Florida

Parth Saraiya, MPH student, George Washington University (joining via Webinar)

Ayden Scheim, Division of Infectious Diseases and Global Public Health, School of Medicine, University of California, San Diego (joining via Webinar)

Marcia Scott, Division of Epidemiology and Prevention Research, National Institute on Alcohol Abuse and Alcoholism, NIH (joining via Webinar)

Katrina Serrano, Health Scientist Administrator/Program Officer, Interdisciplinary Research, ORWH, Division of Program Coordination, Planning, and Strategic Initiatives, Office of the Director, NIH (joining via Webinar)

Betsy Shenkman, Associate Director, Population Sciences, Health Cancer Center, University of Florida

Lisa Shook, Assistant Professor of Pediatrics, Administrative Director, Cincinnati Comprehensive Sickle Cell Center (joining via Webinar)

Monica Sierra, Division of Cancer Prevention and Control, CDC (joining via Webinar)

Alena Smith, Graduate Student (joining via Webinar)

Michael Spittel, NIH (joining via Webinar)

David Stinchcomb, Westat, Maryland

Denise Stredrick, Health Scientist Administrator/Project Officer, ORWH, HHS/NIH/OD/DPCPSI (joining via Webinar)

Eward Strickler, School of Medicine, University of Virginia (joining via Webinar)

Jariah Strozier, Doctoral Student, Certified Health Education Specialist, Adviser of Black Organizations Council, Department of Sociology, Virginia Tech (joining via Webinar)

L. Jospeh Su, Department of Epidemiology, University of Arkansas for Medical Sciences (joining via Webinar)

Bob Sun, Fellow, NIEHS, NIH

Megan Sutter, Postdoctoral Research Fellow, Moffitt Cancer Center, Florida (joining via Webinar)

Catherine Tallant, Doctoral Candidate, Florida School of Professional Psychology at Argosy University (joining via Webinar)

Kosuke Tamura, Postdoctoral Fellow, NHLBI, NIH

Caitlin Turner, Data Manager, Center for Public Health Research, San Francisco Department of Public Health (joining via Webinar)

Kathleene Ulanday, Predoctoral Student, Graduate Research Assistant, Department of Epidemiology, Mailman School of Public Health, Columbia University

Suggested Citation:"Appendix A: Agenda and List of Participants." National Academies of Sciences, Engineering, and Medicine. 2018. Improving Health Research on Small Populations: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25112.
×

Robin Vanderpool, Associate Professor, Department of Health, Behavior & Society, University of Kentucky College of Public Health (joining via Webinar)

Cindy Veldhuis, Ruth Kirschstein Postdoctoral Research Fellow, School of Nursing, Columbia University (joining via Webinar)

Amy Veney, Lecturer, Kent State University, College of Nursing

Ed Villalaz (joining via Webinar)

Cynthia Vinson, Senior Adviser for Implementation Science, Implementation Science Team, Division of Cancer Control and Population Sciences, NCI, NIH (joining via Webinar)

Caroline Voyles, Director, Student Placement & Partnership Development, Dornsife School of Public Health, Drexel University (joining via Webinar)

Paul Wesson, Postdoctoral Fellow, Center for AIDS Prevention Studies, University of California, San Francisco (joining via Webinar)

Chris Wheldon, Cancer Prevention Fellow, National Cancer Institute

Jamie White, Presidential Management Fellow—STEM (Special Assistant), ORWH, NIH

David Wilson, Director, Tribal Health Research Office, NIH

Andrea Wirtz, Assistant Scientist, Johns Hopkins Bloomberg School of Public Health

Diana Withrow, Postdoctoral Fellow, Division of Cancer Epidemiology and Genetics, NCI, NIH

Behailu Woldegiorgis, Researcher, Ethiopia

Laura Wyatt, Research Data Manager, Section for Health Equity, Department of Population Health, NYU School of Medicine (joining via Webinar)

Jessica Xavier, Health Scientist, HRSA/HAB/OTCD/DEB

Sheldwin Yazzie, Exposure Scientist/Epidemiologist, AASTEC, Albuquerque, New Mexico

Melanie Young, Biological Scientist, U.S. Environmental Protection Agency

Mandi Yu, Surveillance Research Program, Division of Cancer Control and Population Sciences, NCI, NIH (joining via Webinar)

Xingyou Zhang, Senior Mathematical Statistician, Economic Research Service

National Academies of Sciences, Engineering, and Medicine Staff

Hermann Habermann, Senior Program Officer, Committee on National Statistics

Brian Harris-Kojetin, Director, Committee on National Statistics

Nancy Kirkendall, Study Director, Committee on National Statistics

Suggested Citation:"Appendix A: Agenda and List of Participants." National Academies of Sciences, Engineering, and Medicine. 2018. Improving Health Research on Small Populations: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25112.
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Anthony Mann, Program Coordinator, Committee on National Statistics

Sharyl Nass, Board Director, Health and Medicine Division

Jordyn White, Program Officer, Committee on National Statistics

Suggested Citation:"Appendix A: Agenda and List of Participants." National Academies of Sciences, Engineering, and Medicine. 2018. Improving Health Research on Small Populations: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25112.
×

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Suggested Citation:"Appendix A: Agenda and List of Participants." National Academies of Sciences, Engineering, and Medicine. 2018. Improving Health Research on Small Populations: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25112.
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Suggested Citation:"Appendix A: Agenda and List of Participants." National Academies of Sciences, Engineering, and Medicine. 2018. Improving Health Research on Small Populations: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25112.
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Suggested Citation:"Appendix A: Agenda and List of Participants." National Academies of Sciences, Engineering, and Medicine. 2018. Improving Health Research on Small Populations: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25112.
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Suggested Citation:"Appendix A: Agenda and List of Participants." National Academies of Sciences, Engineering, and Medicine. 2018. Improving Health Research on Small Populations: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25112.
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Suggested Citation:"Appendix A: Agenda and List of Participants." National Academies of Sciences, Engineering, and Medicine. 2018. Improving Health Research on Small Populations: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25112.
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Suggested Citation:"Appendix A: Agenda and List of Participants." National Academies of Sciences, Engineering, and Medicine. 2018. Improving Health Research on Small Populations: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25112.
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Suggested Citation:"Appendix A: Agenda and List of Participants." National Academies of Sciences, Engineering, and Medicine. 2018. Improving Health Research on Small Populations: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25112.
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Suggested Citation:"Appendix A: Agenda and List of Participants." National Academies of Sciences, Engineering, and Medicine. 2018. Improving Health Research on Small Populations: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25112.
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Suggested Citation:"Appendix A: Agenda and List of Participants." National Academies of Sciences, Engineering, and Medicine. 2018. Improving Health Research on Small Populations: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25112.
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Suggested Citation:"Appendix A: Agenda and List of Participants." National Academies of Sciences, Engineering, and Medicine. 2018. Improving Health Research on Small Populations: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25112.
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Suggested Citation:"Appendix A: Agenda and List of Participants." National Academies of Sciences, Engineering, and Medicine. 2018. Improving Health Research on Small Populations: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25112.
×
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Suggested Citation:"Appendix A: Agenda and List of Participants." National Academies of Sciences, Engineering, and Medicine. 2018. Improving Health Research on Small Populations: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25112.
×
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Suggested Citation:"Appendix A: Agenda and List of Participants." National Academies of Sciences, Engineering, and Medicine. 2018. Improving Health Research on Small Populations: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25112.
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Suggested Citation:"Appendix A: Agenda and List of Participants." National Academies of Sciences, Engineering, and Medicine. 2018. Improving Health Research on Small Populations: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25112.
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Suggested Citation:"Appendix A: Agenda and List of Participants." National Academies of Sciences, Engineering, and Medicine. 2018. Improving Health Research on Small Populations: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25112.
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Suggested Citation:"Appendix A: Agenda and List of Participants." National Academies of Sciences, Engineering, and Medicine. 2018. Improving Health Research on Small Populations: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25112.
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Improving Health Research on Small Populations: Proceedings of a Workshop Get This Book
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The increasing diversity of population of the United States presents many challenges to conducting health research that is representative and informative. Dispersion and accessibility issues can increase logistical costs; populations for which it is difficult to obtain adequate sample size are also likely to be expensive to study. Hence, even if it is technically feasible to study a small population, it may not be easy to obtain the funding to do so. In order to address the issues associated with improving health research of small populations, the National Academies of Sciences, Engineering, and Medicine convened a workshop in January 2018. Participants considered ways of addressing the challenges of conducting epidemiological studies or intervention research with small population groups, including alternative study designs, innovative methodologies for data collection, and innovative statistical techniques for analysis.

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