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Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2021. Exploring the State of the Science of Solid Organ Transplantation and Disability: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26213.
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Appendix B

Workshop Agenda

MARCH 22, 2021

12:30 p.m. Welcome and Workshop Overview
Sara Rosenbaum, The George Washington University
Workshop Planning Committee Chair
Sponsor Remarks from the U.S. Social Security Administration (SSA)
Gina P. Clemons, SSA
Vincent Nibali, SSA
12:50 p.m. Session 1: Solid Organ Transplantation in the United States: Clinical Challenges for Organ Recipient Functioning
Moderator: Paul Kimmel, National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), National Institutes of Health (NIH)
Overview and Current Trends of the Organ Transplantation System
  • David Mulligan, Organ Procurement and Transplantation Network (OPTN)
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2021. Exploring the State of the Science of Solid Organ Transplantation and Disability: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26213.
×
Clinical Conditions, Organ Transplants, and the Consequences for Health and Function in Adults
Kidney Transplantation
  • Dorry Segev, Johns Hopkins University (JHU)
Liver Transplantation
  • Shari Rogal, University of Pittsburgh; VA Pittsburgh Healthcare System
Lung Transplantation
  • Erika Lease, University of Washington
Heart Transplantation
  • Hannah Valantine, Stanford University
Disparities in Transplantation Recovery and Survival
  • Tanjala Purnell, JHU
Panel Discussion
2:30 p.m. Break
2:45 p.m. Session 2: Transplantation Over the Life Course:
Transplants in Children and Adolescents and the Consequences for Adulthood

Moderators:
Paul Kimmel, NIDDK, NIH
Dorry Segev, JHU
Clinical Conditions, Organ Transplants, and the Consequences for Health and Function in Children
Kidney Transplantation
  • Maria E. Diaz-Gonzalez de Ferris, University of North Carolina Children’s Research Institute
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2021. Exploring the State of the Science of Solid Organ Transplantation and Disability: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26213.
×
Liver/Intestine Transplantation
  • George V. Mazariegos, University of Pittsburgh Medical Center Children’s Hospital of Pittsburgh
Lung Transplantation
  • Carol Conrad, Lucile Packard Children’s Hospital
Heart Transplantation
  • Clifford Chin, Cincinnati Children’s Hospital Medical Center
Adolescent Posttransplant Transitions to Adulthood
  • Nitika Gupta, Emory University
Panel Discussion
4:00 p.m. Session 3: Experiences of Organ Recipients and Their Caregivers
Moderators:
Melissa McQueen, Transplant Families
Robert Montgomery, New York University Langone
Transplant Institute
Social Worker Perspective
  • Charlie Thomas, Banner-University Medical Center Phoenix
Caregiver Perspective
  • Melissa McQueen, Transplant Families
Organ Recipient Perspective
  • Valen Keefer
  • Dawn Edwards
  • Stephanie Hoyt-Trapp
  • Fanny Vlahos
  • Robert Montgomery
Panel Discussion
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2021. Exploring the State of the Science of Solid Organ Transplantation and Disability: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26213.
×
5:10 p.m. Closing Remarks
Paul Kimmel, NIDDK, NIH
5:15 p.m. Adjourn Day 1

MARCH 23, 2021

10:00 a.m. Welcome and Workshop Overview
Sara Rosenbaum, The George Washington University
Workshop Planning Committee Chair
10:05 a.m. Session 4: Treatments, Technologies, and Interventions Affecting Posttransplant Functioning
Moderators: Dorry Segev, JHU
Hannah Valantine, Stanford University
Pretransplant Care Management Approaches
  • Mara McAdams-DeMarco, JHU
Pharmacologic Treatments in Transplantation
  • Saeed Mohammad, Northwestern University Feinberg School of Medicine
Posttransplant Rehabilitation: Optimizing Long-Term Outcomes After Transplant
  • Sunita Mathur, University of Toronto
Palliative Care in Solid Organ Transplantation
  • Kirsten Wentlandt, University Health Network, Toronto
Panel Discussion
11:15 a.m. Session 5A: Assessing Physical, Cognitive, and Psychosocial Function After Organ Transplantation in Adults
Moderators:
Erika Lease, University of Washington
Shari Rogal, University of Pittsburgh; VA Pittsburgh
Healthcare System
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2021. Exploring the State of the Science of Solid Organ Transplantation and Disability: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26213.
×
Assessing Physical Functioning in Organ Transplantation
  • Jignesh Patel, Cedars-Sinai Medical Center
Cognition in Organ Transplantation
  • Aditi Gupta, University of Kansas Medical Center
Psychosocial and Emotional Functioning in Transplantation
  • Andrea DiMartini, University of Pittsburgh
Panel Discussion
12:15 p.m. Break
12:30 p.m. Session 5B: Assessing Physical, Cognitive, and Psychosocial Function After Organ Transplantation in Children
Moderators:
Erika Lease, University of Washington
Shari Rogal, University of Pittsburgh; VA Pittsburgh
Healthcare System
Physical and Cognitive Functioning in Pediatric Organ Transplantation
  • Saeed Mohammad, Northwestern University Feinberg School of Medicine
Psychosocial Risk Factors Associated with Clinical Outcomes in Children
  • Eyal Shemesh, Mount Sinai Kravis Children’s Hospital
Panel Discussion
1:20 p.m. Break
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2021. Exploring the State of the Science of Solid Organ Transplantation and Disability: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26213.
×
1:30 p.m. Session 6: The Future Outlook for Organ Transplantation and Disability
Moderators:
Sara Rosenbaum, The George Washington University
James Bowman, Health Resources and Services Administration
Panel Discussion
Panelists:
  • Aditi Gupta, University of Kansas Medical Center
  • Erika Lease, University of Washington
  • Jignesh Patel, Cedars-Sinai California Medical Center
  • Tanjala Purnell, JHU
2:10 p.m. Concluding Remarks
Sara Rosenbaum, The George Washington University
Workshop Planning Committee Chair
2:15 p.m. Adjourn
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2021. Exploring the State of the Science of Solid Organ Transplantation and Disability: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26213.
×
Page 95
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2021. Exploring the State of the Science of Solid Organ Transplantation and Disability: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26213.
×
Page 96
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2021. Exploring the State of the Science of Solid Organ Transplantation and Disability: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26213.
×
Page 97
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2021. Exploring the State of the Science of Solid Organ Transplantation and Disability: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26213.
×
Page 98
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2021. Exploring the State of the Science of Solid Organ Transplantation and Disability: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26213.
×
Page 99
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2021. Exploring the State of the Science of Solid Organ Transplantation and Disability: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26213.
×
Page 100
Next: Appendix C: Biographical Sketches of Workshop Planning Committee Members and Speakers »
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 Exploring the State of the Science of Solid Organ Transplantation and Disability: Proceedings of a Workshop
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Transplantation of a solid organ, such as a kidney, heart, or liver, is a lifesaving procedure and is sometimes the only viable treatment for patients experiencing end-stage organ failure as a result of illness or injury. A growing prevalence of solid organ diseases in the United States is contributing to more people needing a transplant and longer wait times on the national transplant waiting list. While transplantation can lengthen a person's life, the road to recovery is difficult and complex. Transplant recipients commonly experience considerable impairments related to health factors, medication side effects, organ rejection, or other setbacks that can cause functional limitations. A spectrum of services and supports can be beneficial to patient functioning and quality of life, but patient access is variable due to individual, system, and social factors.

To gain an understanding of current scientific findings in the field of solid organ transplantation, the U.S. Social Security Administration asked the National Academies of Sciences, Engineering, and Medicine's Board on Health Care Services to organize a virtual public workshop to examine disability associated with organ transplantation. The workshop, held March 22-23, 2021, focused on kidney, heart, liver, and lung transplantation, and to a lesser extent intestine transplantation. Subject-matter experts presented on clinical aspects of post-transplantation recovery and described the implications for physical, cognitive, and psychosocial functioning in adults and children. This publication summarizes the presentations and panel discussions from the workshop.

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